Advice wanted for post tube removal (... - Fertility Network UK

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Advice wanted for post tube removal (salpingectomy) IVF

glt01 profile image
19 Replies

Me and my husband have been told we need IVF with ICSI however before this, I need to have an operation to see if my Fallopian tubes are patent / damaged if they are damaged then they're going to take them out. I wondered if anyone knew how long clinics tend to make you wait before they will start ivf post op. I've read varying things on the internet that some clinics tend to make you wait 3-6 months post removal of tubes and some say you can start on the next cycle for IVF. Im going to ring the clinic but because we don't have an allocated IVF nurse yet we can only speak to the receptionist who is lovely but unfortunately not very helpful with stuff like this and the nurses are very busy so unable to help. Any advice or experience would be appreciated- thank you !

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19 Replies
thejourney profile image
thejourney

Hi, i think i replied to your other post. I had both of my tubes removed due to scaring and hydrosalphinx seen during a laparoscopy because of cervical stenosis. I had the proceedure in Dec 2017 along with ovarian biopsies and had my first FET in March 2017 which sadly failed. I had to wait until i had the all clear from my biopsies before i could be referred back to fertility for our 1st transfer but was advised i could start immediately by my surgeon- the delay was simply due to the waiting list for treatment planning!

hope that helps.x

glt01 profile image
glt01 in reply to thejourney

Thank you! This is very helpful, it's just such an unpredictable time and we would like to feel like we can arrange our lives a little bit in the future few months. I've got my laparoscopy on 5th June and they've said if they see adhesions or tubal damage they're just going to sort it out in one go. Thank you for your comment, hope you've had some luck since x

thejourney profile image
thejourney in reply to glt01

i think the waiting and being unable to plan is one of the hardest parts of IVF for me! im such a planner naturally!

We"ve had no luck as yet but im currently half way through my 2ww on our 3rd FET- fingers crossed!

I hope the laparoscopy goes well on the 5th, at least you'll have some answers and hopefully a plan then!

glt01 profile image
glt01 in reply to thejourney

Fingers crossed for a bfp x

shel81 profile image
shel81

Hi! I had one tube clipped, a polypectomy and scratch by lap on 6th April. I recovered really well and am so eager to get going, especially since I've had the scratch! The consultant was happy for us to request treatment as soon as I had my period, however I've had a very stop start first period (that was early) since the procedure so we've decided to wait and request next month. The consultant agreed its best to get your periods back on track so basically I'll start treatment on my third period after the op. Hope that helps- please give me a shout if you have any questions about the procedure!x

glt01 profile image
glt01 in reply to shel81

Thank you, I have quite sporadic periods which aren't classed as normal so hopefully they'll be sensible and just crack on, did you get all your funding approved prior to your op or did you have Ito have your "pre-consultation" for Ivf post op?x

shel81 profile image
shel81 in reply to glt01

We had everything approved pre-op so we're ready to go. I'd encourage your clinic to get the ball rolling so you're ready as soon as you feel up to it. I'm glad we've had to wait as I've been prescribed metformin and believe it's good to build up the dose and have them in your system a good while. Hope all goes well with the op! Xx

glt01 profile image
glt01 in reply to shel81

I think I'll give them a ring on Monday and find out what they do normally, I don't want to wait any longer than we need to but at the same time I don't want to seem too pushy! Yes definitely, you want it in your system and working fully, thank you and good luck to you too, fingers crossed you get your bfp soon xx

staceymac83 profile image
staceymac83

I had my right tube removed Dec 17 and started ivf treatment in March 18. My clinic advised 3 months to let your body heal but I did wait 3 months on the waiting list for my operation so delayed our treatment by 6 months altogether.

Good luck xx

glt01 profile image
glt01 in reply to staceymac83

Thank you xx

Sammy18 profile image
Sammy18

Hi, I had my tube removed June 2017 and have just had my firsts failed IVF cycle we started Feb 18 so I waited around 7-8 months to start. it was a bit of a longer waiting process as the NHS clinic was due to close and they had to find private clinics to take over, so hopefully if you need IVF then it will not be so long a wait.

glt01 profile image
glt01 in reply to Sammy18

Thank you, did you have to get your funding sorted post op or was it sorted before? Sorry to hear it didn't work out

Sarahlou01 profile image
Sarahlou01

I had my left tube clipped in December along with removal of an endometrioma and was allowed to start a frozen cycle in February x

glt01 profile image
glt01 in reply to Sarahlou01

Thank you x

Macca13 profile image
Macca13

Hi glt01 . I had my Fallopian tube removed September one year and started treatment January the following year so not too long at all, sadly wasn’t to be for me but everyone is different. Good luck xx

glt01 profile image
glt01 in reply to Macca13

Thank you, I'm hoping they don't make us wait too long x

glt01 profile image
glt01

Thank you all for your help, it's very useful. ❤️

Purpledazzle27 profile image
Purpledazzle27

I had a tube removed years ago and remaining tube is damaged and blocked which is reason I had ivf. The consultant said I may need to have that tube clipped and I did not want this at all as I had already had 4 surgeries in the past. She agreed that I could have an ultrasound to check it wasn’t swollen with fluid and I could then go ahead with my ivf. Really glad we did this as my first go was successful. We still had a long delay as my husband was over the bmi threshold for nhs funding and it took over 6 months for him to lose the weight so we could get funding. All the best on your journey xx

glt01 profile image
glt01 in reply to Purpledazzle27

Thank you for your reply, it's very useful to get everyone's feedback. Glad you got your bfp xx

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