IVF APPEAL: Hi all I new to this,... - Fertility Network UK

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IVF APPEAL

Lissalou profile image
16 Replies

Hi all I new to this, 3 years ago I had PID I was told I'd need IVF, I was also told that I'd have 3 full attempts and if they were unsuccessful then I'd have to have an hysterectomy. I've been to see my gynaecologist and I've now been told that I'm not entitled to NHS as my partner has a child from a previous relationship. I find this really frustrating as it's me with the 'problem' not my partner. I've got a low egg reserve I'm 28 years of age and never been caught pregnant not once. And advise on what I can do to try and fight the decision would be greatly appreciated thank you in advanced

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Lissalou profile image
Lissalou
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16 Replies
Smurf34 profile image
Smurf34

Aww that's awful. I hope that it all works out for you very soon! Praying x

Lissalou profile image
Lissalou in reply toSmurf34

Thank you Smurf34

Smurf34 profile image
Smurf34 in reply toLissalou

nhs.uk/chq/Pages/889.aspx have you had a look at the guidlines for getting IVF with NHS? Click the link x

Lissalou profile image
Lissalou in reply toSmurf34

Yes I've been on this website many times before, it states that you can't have NHS IVF if you or your partner has children together or with an ex partner. My partner has a child with a former relationship so I've been told I'm not entitled to NHS treatment even though it's my only chance

Tugsgirl profile image
Tugsgirl

I’m really not sure that there’s anything that can be done.. I have a friend in a similar situation, her OH has two children from a previous relationship so they didn’t qualify for funding. It’s terribly unfair. I hope you can figure something out 🤞 xx

Lissalou profile image
Lissalou in reply toTugsgirl

Thank you Tugsgirl it really is unfair but I'm hoping to fight against the decision made in currently looking for a human rights solicitor, as I don't see it fair my basic human rights being thrown away all because my partner has a child already thanks for your reply and fingers crossed your friends has some joy in the future x

I’m so sorry.

We experienced this rule too- I have a son from a previous relationship and we were denied ivf funding- it’s a disgrace such a rule can exist. Fair enough if you both have children( even if not with each other) as you say it’s a violation of your human rights.

We were discharged- our first fertility doctor wasn’t interested investigating the reason we couldn’t conceive- we had the basic tests no more- and were told it was ivf or trying and we won’t fund you. It was a horrendous experience which made me skeptical over trusting medical profession.

Anyway fast forward a few years I was sent to a good fertility doctor via a gynaecologist for my menstrual issues my ex fertility doctor didn’t bother investigating, It turns out I have endometriosis- i fell and miscarried. It is awful there are such floors in the system.

I know the CCG will allow funding in exceptional circumstances and perhaps yours is. We never tried to appeal as we didn’t feel we were exceptional case and I had health issues caused by my endometriosis.

I wish you luck and I hope you get funded. xoxo

Lissalou profile image
Lissalou in reply to

Thank you for your reply jess1981 I'm so sorry you had to go through all of that and I hope your new fertility doctors helps you. I ended up getting PID I had 2 keyhole surgeries the first one was to see what was wrong and the second to unblock my tubes. My only hope is IVF but I've been denied. I was never offered any medication to help increase my fertility or anything I feel like iv let myself down I just don't know what to do next. I tried to adopt but I was refused as I'm on anti depression tablets due to me being depressed about my fertility. I'm just hoping one day I'll be the mom I'm desperate to be, iv also been told iv got a low egg reserve I just feel like I'm a ticking time bomb

Mrsgled1982 profile image
Mrsgled1982

It is really unfair the way that they decide who gets funding and who does not. I think it should be a evenly distributed. As some areas get 3, some get only 1 and where my sister in law lives they dont get any at all.

Same sex couples dont get any help at all, even if one of them has a medical condition that if they were in with a man they would probably get help with.

Unfortunately the powers that be dont see it as a human right to have children. I think they see it as oh the partner already has a child they can play mum/dad to them. But its not the same at all. Am sure if it was them or their loved ones they would feel differently.

I hope you get somewhere with it x

Lissalou profile image
Lissalou in reply toMrsgled1982

Thank you for your reply Mrsgled1982 it really is an unfair system i was told I would get 3 full cycles and if unsuccessful with in 12 months I'd have to have an hysterectomy but when I speak to my gynaecologist they refuse to give me either of them I then asked for a second opinion just for them to tell me the same I just don't know where to turn next on the appeal process x

Mrsgled1982 profile image
Mrsgled1982 in reply toLissalou

Its such a shitty thing. But unless someone takes a stand nothing will change.

Ive got pcos so my chances of conceiving naturally are very low, we only qualified for 1 go on the NHS but have scrimped n saved so we had enough money to go again.

No body should have to give up their dreams of being a mum/dad just because some t@@t in a suit says so.

Xx

Lissalou profile image
Lissalou in reply toMrsgled1982

I do agree with you 100% I'm sorry to hear that you are also going through the same sort of situation as myself if you don't mind me asking which clinic do you intend on using for your second round of IVF only so I can do some research for prices etc x

Mrsgled1982 profile image
Mrsgled1982 in reply toLissalou

Im still with my NHS clinic but have gone through access fertility and got a 3 cycle refund package xx

Lissalou profile image
Lissalou in reply toMrsgled1982

Thank you for your reply I will definitely look into that x

I seriously don’t understand why such rules are allowed to exist 🤬🤬🤬

Going through the emotional struggle that infertility brings is hard enough without added pressure of fighting to get treated. 💩

I have been under my fertility specialist for a year and a half- he’s such a lovely man 😀 I wish there more like him in this field!

Try to appeal and if it’s a no, have you considered IVF aboard its considerably cheaper. A third of the price- could you save up and get any relatives to help? You shouldn’t have to give up your dream of being a mum.

Really hope you find a way around this xoxo

Lissalou profile image
Lissalou in reply to

Thank you for your reply jess1981 I'm glad you have found a good fertility specialist, I've considered saving up for treatment abroad I just don't know how to go down the appeal process over asked for a second opinion form the NHS but still got the same answers I've never had nothing in writing and I was never offered fertility tablets to try and boost my fertility I felt like I was just pushed aside x

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