Hi, I'm new here, so let me share my story. This time last year I was diagnosed with a Hydrosalpinx after experiencing really bad pain during ovulation (often a week at a time), accompanied by what can only be described as "flooding" - fluid as thin as water (colourless, odourless) gushing out of me. This would also last for days, which isn't fun, as I go through a few pairs of pants (and panty liners) each day. When it was diagnosed, it was heartbreaking, but I also wasn't surprised.
When I was 20, I had emergency surgery to have my colon removed due to life-threatening Ulcerative Colitis, which left me with a stoma. The following year, I opted in to have the stoma"reversed", meaning they created an internal pouch from my small intestine. With it being such major, invasive surgery, this came with risks, one of them being reduced fertility. At the time I made the tough choice to improve my quality of life.
So now I'm faced with yet another choice. My hydro is so bad (it's big and it's regularly painful) that I have to have it removed, plus it's the only way IVF will have a true chance of working. The usual route would be laparoscopic surgery, BUT due to all my internal scarring, my colorectal surgeon says this is a complete no go, as they won't be able to see and could damage my very working intestinal pouch.
So, my options are - clip it and drain it, but live with the pain; or have full open surgery to remove it, which carries potential risk of disrupting my pouch.
I'm currently on a year long waiting list for the latter (so long as it would be a dual surgery - gynae and colorectal), but I'm constantly questioning it.
Is there anyone here that has/is gone/going through the same? I can't be that unique!