NHS funding axed 😭: We have had a... - Fertility Network UK

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NHS funding axed 😭

robbie03 profile image
robbie03
β€’12 Replies

We have had a letter through after we were referred in April (after Months and months of tests and waiting), the letter says there is no funding after June 2017....our referral has missed the deadline by 11 days apparently. No warning, no notice, just a letter!!! Not even sure how to react, I'm shocked and sad....xxx

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robbie03 profile image
robbie03
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12 Replies
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_MrsC profile image
_MrsC

Oh gosh! I'm so sorry. What a huge shock. Sending you a big hug. xxx

Newqgirl1 profile image
Newqgirl1

😱 omg no way, we haven't heard anything about funding but are working around the same timeline. I am totally gutted for you this is crazy ☹️

Tugsgirl profile image
Tugsgirl

That's terrible! Can you appeal it? I don't know what else to suggest xx

robbie03 profile image
robbie03β€’ in reply toTugsgirl

My husband has called consultant (who's away for 3 weeks) and also gone to GP, as a misreading on a result has cost us the delay of a year, and as it turns out, our funding! Sad times! Xxx

Tugsgirl profile image
Tugsgirlβ€’ in reply torobbie03

Definitely 😞 I hope that something can be done to help you 🀞 xx

krw345 profile image
krw345

Oh my god this is outrageous. Which CCG are you covered by? Does it mean they've cut all IVF funding for everyone in your area?

I would recommend getting in touch with The Fertility Network via email and asking them for advice. I can't believe that there isn't more awareness about the cuts to IVF funding. It's appalling.

I'm so sorry it's affecting you directly like this. I don't know if you feel inclined or have the energy to post a petition on 38 degrees or a similar site? I'm sure all of us here would sign it.

lau_har1 profile image
lau_har1

Me and my partner literally just got on to our local IVF funding about 2 weeks before they closed all funding. We went to a meeting (before they decided to stop funding) with other couples that was either waiting to get on the list or already on the IVF list and it was completely heartbreaking. Talking to the people in charge from our local CCG who were there just because it was their jobs, but to us it is literally everything. It's disgusting how they have taken it away.. they told us that it cost them around Β£800,000 a year for funding IVF and I said well that's just an average house in London (not even a fancy one at that). The fact that they can take this opportunity from innocent and vulnerable people is something I will never be able to understand. I really hope you get things sorted and you get your chance x

Oakey80 profile image
Oakey80

This happened to me though not quite as bad....they changed it from 3 goes to 1 with no notice. We missed it by 10 days and that's only because I had to move an appointment due to work. If I'd known I'd never have changed it! (But they don't want you to know!) So sorry for you xxx

Alice_W123 profile image
Alice_W123

They must be kidding.

If they really f.cked up you can sue them and take some compensation with NHS funding.

Good luck to you!

Leesara profile image
Leesara

This is just so awful, I'm so sorry to hear it.... how do u know which Ccg or assistive contraception unit does and doesn't have funding?

HannahTramaseur profile image
HannahTramaseurPartnerFertility Network UK

Hi robbie03, I'm sorry to hear about this - please can you email me more information so we can look into this for you. Please email me: hannah@fertilitynetworkuk.org with as much information as possible.

Best wishes,

Hannah

robbie03 profile image
robbie03β€’ in reply toHannahTramaseur

Thanks Hannah - my husband has copied the letter and I'll email you it, thanks so much!

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