When you think surely your body can't be even more of a pain in the neck..it does!
Have fought for 18 years to finally get listened to and diagnosed with endometriosis. Which has also caused my infertility. I am currently on my first round of IVF and started the 2nd stage of the Long Protocol injecting Menopur last Thursday.
Yesterday I had the 8 day scan. These scans are painful due to the endo anyway but they had concerns over a shadow on the image so I was probed 4 times (2 of which were because the machine wasn't working properly when tried.). Then told to wait whilst they got a consultant to have a look. So of course your mind starts doing overtime about what has been seen. Typical as was on my own there too.
Called into consultants office and was told the following (after each point when you think that is it there was another "also you have...")
1. Follicles aren't progressing well so up dosage to 300.
2. Concern of shadow on uterus which could be just thickening of the lining which is doubling on itself or it is a polyp. If a polyp then once collected eggs will freeze them and do a hysteroscopy. Then later do embryo transfer using frozen eggs, not fresh.
3. My uterus looks like it has never fully developed. Something to do with it is usually 2 parts which join when pregnant but I only have 1? I was confused by this and prob not understood it correctly as was being bamboozled with all the new info.
4. Uterus appears tilted.
4. They wanted me to have a proper mock embryo transfer, in the theatre room, legs in stirrups, full bladder. (They had tried a mock transfer the week before but not a proper one as I didn't have full bladder, wasn't in stirrups, no ultra sound guide and thought I should be relatively ok for the actual one.) As the dr wasn't happy with last weeks results. So within 10 mins I was taken down....this is when HELL started!
Can't fault the nurses/drs they were all lovely. I went in at 12 and didn't come out the room until gone 1! (had been at clinic since 10am) When did I was sobbing, body shaking, in such pain! First attempt they couldn't get the tube into the uterus and had been trying for ages and then I was already in lots of pain, crying and shaking. So they got another consultant to try..if I was happy to. I wanted to scream no! But wanted them to be able to do it or else worried it may end my IVF chances. But same thing happened. Eventually I had to ask them to stop. Which they agreed on and said I had done so well and been so brave. Didn't feel it! Felt like a failure. Smears, internal ultrasounds, intercourse, have always been painful for me so this was no surprise but it was the worst ever!
Consultant came and told me that my uterus is severely tilted and the neck of it is tilted over on itself! So they were struggling to get the tube in. She had almost got it in when I had finally cried out I'd had enough and could they stop. So she said that when and if we get to egg transfer day I will have to be sedated as will be less traumatic for me and easier for them to mess about and poke. Feel gutted as wanted be awake for this part and experience it with my husband.
But it was also like " I already have severe endo and all its horrible symptoms causing me, my life, my body misery, then needing IVF, now I find out my body has even more wrong with it! " Just so fed up. Would be nice to have a break from body causing issues and complications and for just once things to go smoothly! Must admit when in the recovery room it did go through my head "why am I putting myself through all this?!" Was just such an emotional, traumatic day.
Back tomorrow for a scan to see how follicles are doing and the shadow.
Sorry for the long post. Just needed to rant. Thank you for reading..you can wake up now