Fatty Liver NAFL

[53447363]

FibroSure has me at F3 possible Nash Fibroscan from liver doc. say only mild fatty liver . which test is correct and this should not happen. I am a newbe

[nash2 Partner]

One of our challenges is that all tests are imperfect and have fairly wide margins for error. Results have to be looked at with an eye toward sources of error and in the context of all the other things your doc knows about your situation. You have to consider what might make a given test more or less useful and you need to consider actual measurements not just broad statements. Not much help, but diagnosis of liver health is complex. Since you are new to the problems, here is a place you might start. Getting educated is your first mission.

fattyliverfoundation.org/wi...

Wayne

[53447363 in reply to nash2]

Thanks for the information it seems what you are saying there is no way that you have Liver problems until, you are in an advanced stage or have symptoms which it not much to help us really know what is going on.

[nash2 Partner in reply to 53447363]

It is important to understand that most people don't have symptoms until the disease is quite advanced which makes it very difficult. Also, we don't have very accurate diagnostic tools so it is very challenging. You didn't provide much information so the comments are very general. The message, however, is still that you need to educate yourself going forward as you apparently have early stage disease so the smart thing is to understand the details. Another test you might consider, I use this one myself, is LIVERFASt. Here is a link to information about that strategy.

fattyliverfoundation.org/li...

[FredNMNSmith in reply to nash2]

Are you saying that little confidence should be placed in the current diagnostic tools, like US or Elastography? Blood work? That begs the question why are these tests being done if the margin for errors are so high and they don't provide much help in diagnosis. That is very discomforting.

[bookish in reply to FredNMNSmith]

It is quite disconcerting. Dr David Unwin talks of Gamma GT giving useful early warning, but quotes Prof Roy Taylor and 'the long silent scream from the liver' which can last 10 or even 15 years without identifiably problematic testing and often without symptoms, or not sufficiently specific symptoms. So we are already on the back foot before we begin. Much like trying to maintain or restore gut health, I think for good health supporting liver function should be foundational. We can't afford to wait for the testing to catch up, if we have reason to believe that all is not well. I have been trying to get doctors to consider that my liver must be under considerable strain and can't be working well, for a few years, without any sort of interest. (Much the same response with gall bladder). Now it has got to the point of blindingly obvious (to me) and I continue to read and make changes. Best wishes.

[FredNMNSmith in reply to bookish]

So why do we take these tests? Seems like a waste of time and money if they are not telling us anything substantive

[bookish in reply to FredNMNSmith]

I don't know enough about the specific testing to be able to judge, sorry. But my experience has been that testing is often too late and too imprecise, and often diagnoses take a long time. B12 status, thyroid, coeliac, Sjogren's for example, all also have poor testing with many people 'missed', and problematic diagnosis and treatment often after years of symptoms. They will not be the only ones. So any early pointers that we get, particularly for conditions that we can help (even a bit) with diet and lifestyle changes, we should be listening to our bodies and making those changes. Testing is not everything.

[FredNMNSmith in reply to bookish]

I guess what i am confused about is all the different fibrosis tests for liver...be they imaging or serum. Are any of them really accurate or effective

[LindaC in reply to bookish]

Absolutely - everything you say. Oh my!

[bookish in reply to LindaC]

The more I read, the more it seems that blood sugar control is huge as it has such wide ranging effects. Also anything else preventing good nutrition to brain and cells, so poor blood flow/oxygen/anaemia and poor digestion so lack of nutrients and inflammation triggers. If brain isn't working well, the whole cannot. Best wishes

[LindaC in reply to bookish]

Thank you - that's good to hear and mine is - but... seems there is so little understanding on this by doctors. Oh, as with some docs of today with hypothyroidism, CFS... WHAT exactly is going on!? Sometimes if feels as is 'snake oil' has become 'smoke and mirrors'! 👽

[bookish in reply to LindaC]

It does seem like multiple missed opportunities to keep us healthy rather than try to fix us once a diagnosed disaster area, and when most of these conditions build over such a long time we know looking back that there often were signs, small, subtle changes perhaps, but things we can now see that were relevant and were missed or ignored by us and often by doctors even if we tried. I'm glad you have some of it under control, as I do, and once aware, we can work on the rest. Best wishes

[LindaC in reply to bookish]

Indeed. For me it's more when docs know you had an abnormal test and didn't even say! May we both continue on our path of [relative] success. Very Best Wishes to you too.

[53447363 in reply to bookish]

Thanks for the post and went to doc. yesterday and he said I was in F2 and all my liver functions are good and to good and Get a Hepatitis shot

[bookish in reply to 53447363]

Well at least you know where you stand, so now it is up to you to take action to reverse as much as possible, and learn, as nash2 said in his first reply and link. Best of luck

[53447363]

all I know the fibroscan states just mild fatty liver and the fibrosure said i was a F3 and most likely Nash. somthing is wrong somewhere very wrong.

[PNIAuthor60]

What is FibroSure?

[53447363 in reply to PNIAuthor60]

FiborSure is a liver test done only by labcor in chattanooga and my results were not good F3 Bridging Fibrosis and possible Nash where as the Liver doctor fiborscan said only mile fatty liver F0 and F1