A 3rd opinion? Really?!: I need advice... - Living with Fatty...

Living with Fatty Liver and NASH

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A 3rd opinion? Really?!

AllHis profile image
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I need advice.

I started with abnormal side effects to medication last summer. I was being treated for a sinus infection last summer, but the hearing loss was due to something else. All the while the prednisone was giving me severe heartburn and hot flashes or excessive sweating. ( part of my story is I was taking turmeric with black pepper extract & Nexium at the same time...) so follow me...Heartburn, sweating like crazy and right rib pain

Well, a year later, I'm on an antidepressant for anxiety. No doctor would treat me until I got my anxiety under control. Well, I am sweating something crazy!

So, Wayne, not long ago told me to look for pieces of a puzzle.

Just last week a neurologist diagnosed me " Cervical Dystonia." " cervical" here refers to neck. The muscles on the right side of my neck will not let go! ( off and on since 2012 and 2018- permenantly stubborn!)

So in getting my second opinion for fatty liver, the doctor assigned was not a liver doctor & was honestly the most difficult physician I've ever met! He would not listen to me, but spent 1/2 hour reviewing my file. I returned for a follow up visit, only to hear that it must be IBS.

WHAT IN THE WORLD IS GOING ON?!

Bottom line is he sees many patients like me every day, and because of Opera, the medical professionals are never believed. WHAT!?! He was ordering no more tests.

His advice is stick with the psychiatrist, and treat my anxiety.

So I was told to increase my anxiety medication yesterday by the phsyciatrist because I'm not at a "maintenance dose." I introduced the Rx 3 weeks ago splitting the pill in 1/2 as advised. Doc wants me at 20 mg, so I went from 10 to 15 last night. The sweating just goes from bad to worse!

So get this! I was prescribed a topical cream for my neck. The neurologist created her own compound with Gabapentin, muscle relaxers and pain meds. I thought topical would be interesting to try. No liver involvement.

Well, guess what?!

Because of the excessive sweating, the topical treatment was a larger dose because of my open pores! I look like I have a red poison ivy necklace on! That's how I've been sweating! It pools off my neck down the front of me!

Hey, Wayne, I'm at a loss here! Words of wisdom anyone? My puzzle pieces are knocked to the ground, and I think the dog may have eaten one!

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nash2 profile image
nash2Partner

Oh my, sadly your story is very extreme but not really rare. Medicine has become so complex that care has become a chorus of specialists each focused on a single organ. I can't give medical advice but you do need to find a doctor that is willing to coordinate your care. It can be hard to find a situation like that and I can't guess what your local situation is but I hope you can find a better care situation. Beyond that a good plant based diet is helpful for most things. I'm sad for you as it is a hard road but we do each walk that road mostly alone.

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Are forums like this of any value to patients really?

opportunity to provide this meeting place for you. Wayne

Does anyone else get really itchy all over?