Is this the “new normal”?: It’s the... - Living with Fatty...

Living with Fatty Liver and NASH

8,255 members2,162 posts

Is this the “new normal”?

Dying101 profile image
5 Replies

It’s the weekend, and I’m waiting for appointments next week. I’ve cut out sugars and caffeine, etc., so on top of being “newly sick”, I feel horrible. My stomach is not working normally, everything comes out immediately. Is this the “new normal”? I feel horrible. Sweating, my neck muscles are in stiff pain, heartburn, nausea. I’m no longer projectile vomiting, but this is rough.

I need a biopsy to confirm but the ER doctor thinks it’s NASH, Stage 2. I can’t believe how this “next stage” happened. If you have a fatty liver, please diet and take care of yourself now!! I could have never imagined the degree of “uncomfortable symptoms”.

Written by
Dying101 profile image
Dying101
To view profiles and participate in discussions please or .
Read more about...
5 Replies
nash2 profile image
nash2Partner

A flareup came be pretty uncomfortable. Here is some information about food with NASH that might be of some help.

fattyliverfoundation.org/na...

Wayne

Alterity profile image
Alterity

Do you still have your gallbladder? It is right there with the liver. It could be pushing on the liver. Just a thought for all the pain suddenly. I'm in stage 4 and I don't have that much pain, but then we are all different.

Dying101 profile image
Dying101 in reply toAlterity

I had a blocked bile duct and enlarged gallbladder, which was the first ever of any symptoms (which it was a symptom looking back on it). Then, months go by with nothing. Acid reflux starts again and flank pain, I go to Mayo (I knew something was wrong). I had a CT, Bloodwork, anal manometry, Bravo, etc dome in August. Everything was fine. Sadly, the doctor didn’t even mention a fatty liver.

We go to universal and back, and wham! My bloodwork still looked “okay”, but the bomb of ascites and fibrous liver was documented. Since then, I’ve felt horrible and “full”, had high BP, new muscle cramps in legs and neck. It was over the course of a few days. I go to a new GI today—asked for a heptalogist. I’m literally dying. My guess is I have late stage cirrhosis. I’m helping my kids online now, messaged the Mayo doctor a million times, I’m scared too death and barley can keep my head up. I haven’t slept in a day.

sophiaS1980 profile image
sophiaS1980 in reply toDying101

Hi, i would hope you were feeling better. If your labs are good and your albumin is normal, you don't have ascites. hope u feel better.

Dying101 profile image
Dying101 in reply tosophiaS1980

That’s the one thing I know for sure. I got a second opinion yesterday. There are ascites there but neither doctor thinks it’s from my liver—that they both think is still in fatty stages based on the 2 CTs.

I did more bloodwork, again, yesterday (And passed out while giving it). At present, I have a few of the beginning stages of cirrhosis but missing the end: menestrual problems (fibroids), now a prolapsed hemorrhoid—OMG horrible, high BP, ascites, muscle cramps, my head hurts, etc., They are concerned about the ascites. I have an ultrasound Wednesday to make sure the fluid is still there (if it is—they will draw the fluid out to test) with Mayo and pushed until they referred me to Hepatology. They don’t quite understand, being I don’t have a gallbladder. Only possibilities thrown out are a burst ovarian cysts or bile duct to liver blocked. They truly don’t know. They keep saying the ascites could be from “other things.” I feel like I should be in the hospital NOW, but it’s “wait until Wednesday”. I’ve read bloodwork can be lagging or be normal and still have cirrhosis—I think they would know that?

Not what you're looking for?

You may also like...

I’m new

Hi all I’m new and trying to understand. I just found out I have cirrhosis/NASH. My first concern...
Bobbie19 profile image

A NEW ME !!!

Hi I am Herman 7275 , not been here for awhile but thought I would tell all of my progress, I have...
Herman7275 profile image

I’m new here; wondering if others have reduced NASH stage 3 fibrosis?

Hi, I’m happy to have found this group. I was recently diagnosed with NASH stage 3 fibrosis. Have...
Cats2018 profile image

New Here!

Even though I joined in May, it appears as though I didn’t introduce myself. I just turned 67 and...
Bluegirl52 profile image

Gallbladder removal pros and cons

Drs are considering putting me up for gallbladder removal due to sludge and nothing being a direct...
Amethyst91 profile image

Moderation team

See all
AfternoonCoffee profile image
AfternoonCoffeeAdministrator
SuryaGP7 profile image
SuryaGP7Moderator
RobynD profile image
RobynDModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.