My little girl (she will be 3 in July) has been struggling with constipation for nearly a year. She was prescribed Movicol which helped and all was great. We managed to toilet train her in November and she was doing really well until a week before Christmas when she started having up to 10 soiling accidents per day. The GP thought this was overflow so asked us to continue with Movicol. It got worse and worse so she ended up back in nappies in January this year as she had since developed a fear of the toilet (linked to this issue) and we couldn't keep up with the amount of dirty washing she was producing due to it.
The GP examined her abdomen and did not think there was a blockage but advised us to try disimpaction anyway. We did that but there has still been no change. We have now been struggling with this for five months. The skin around her bum is constantly red raw and she is so upset about it because she is so sore. The GP kept getting us to play about with the doseage of Movicol for 2 weeks at a time to try to find the "maintenance dose" but so far it has made no difference.
We got referred to paediatrics and I explained that in addition to this, she also has a very bloated and hard feeling stomach in the evenings. They asked us to try her out on a dairy and soya free diet which made no difference. We are now waiting on results from a blood test to check for Coeliac Disease, Hirchsprung's Disease and thyroid issues. The paediatrician is now asking us to try different doses of Movicol again to see if it helps but it has been 5 months of trying different doses and I'm so stressed out with it as she is no longer toilet trained (and I feel like she never will be) and is constantly sore due to nappy rash from constant soiling. One day last week, she needed 13 dirty nappy changes.
Has anyone been through this with their child and has any positive outcome from it?