My daughter has been getting recurrent urine infections for 2 1/2 years. She also dribbles her pants every day but does not fully wet herself. Since December she has had 7 infections. The hospital are now saying they don't want to give her any antibiotics to treat the infection and let her fight it herself, this is because her symptoms aren't that bad and apparently manageable (getting up at night for the toilet, feeling like she needs to go nothing coming out, very grumpy moody crys a lot and dribbles more) because she doesn't get 'unwell' or temp. This is very frustrating for us as she is so irritable I can honestly say I know when she has a urine infection because her attitude changes so much and she is so difficult to deal with. I don't know what to do next!! She takes lyrinel 2 a day and lactulose. Trying to get her to drink more but she hates me getting on at her. She was on nightly low dose of antibiotics to keep infections away but she would still get them (different bugs that the night time antibiotics didn't work on) Any advice would be great. Anyone else's kids mood affected by uti's? We are back at the hospital a week on Friday.
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Your post could have been written by me! We are experiencing very similar situation with our 11 year old daughter. I'm sorry I can't give you any advice but I will be reading the replies to your post with interest.
I do feel that although my daughter mostly copes well physically with a UTI, that she seems to struggle mentally. She is up and down, frequently fighting her brother and if we try to talk to her about anything medical she either yells at us to leave her alone or just walks away. Water is always a battle! When we have those brief windows of wellness between UTI's and constipation is well managed, she is a different child.
Best of luck with the appointment on Friday, I wish for you and you daughter, good health.
I completely agree with you physically she copes well but not mentally. I'm fed but fighting with her. We've just got her a watch that vibrates 8 times a day reminding her to go to the toilet and so far so good she is liking having it. Thanks for your reply! Xx
Hello, I don't know if you are still following this but we went to see a new specialist on Monday and this is the regime that he has put my now twelve year old on. Toilet breaks scheduled minimum 7 times a day, 2 x 10min sitting on the loo, after breakfast and the evening meal and a Woble watch to wear as a reminder. Continue the current 7 day course of anti biotics and the day after finishing them send a urine sample off to the lab to see if treatment has been successful and then he will review. He is hopeful the schedule will help her body to retrain itself to know how to go to the toilet and 'hear' all it's signals and once that starts to happen the UTI's won't be as much of an issue as right now. (5 in 2 months). I hope things have improved for you.
The Laundrymaid xx
PS we have just completed our first disimpaction so lots of change!
Hi my daughter is 10 and used to get mild UTI'S.Her urologist didn't agree with prophylactic antibiotics yet when she was referred to a Nephrologist because they found out she had a reflux which may have caused damage to get her kidney,he put her on Trimethoprim she was so much better for a good year then she started getting the UTI's again,since then she has been referred to Great Ormond st and they changed her antibiotic to Nitrofurantoin she is once again well!
She was also taking 15mg of Lyrinel per day and movicol.
I know each child is different and she has quite a complex condition but it's worth maybe getting a second opinion.
Hey my daughter did have a good spell for nearly a year she was on a nightly dose of antibiotics and it works for so long she's had it changed twice. She's had trimethoprim and nitrogurantion both worked for a while but then she got infections that were resistant to these. I would like them to put her on another antibiotic but understand that the bugs get resistant. So frustrating. Thanks for your reply! Xx
my daughter has been on nitrofurantoin since April. We have heard mixed opinions on whether to 'rotate' the prophylaxis to something else, potentially at 6 months? Is this something you have ever discussed with doctors?
No they haven't suggest this they now just want us to let it run its course (undone infection) and see what happens - see if she can get over it herself in the mean time we struggle with her being irritable/grumpy xx
Has your daughter ever used a uroflow 'toilet' or had a bladder scan after 'voiding'? My daughter had about 5/6 lots of antibiotics after uti's in the first 3 months of this year. Part of her problem is not emptying her bladder, this was made worse by her ditropan medication for overactive bladder. From her appt at Evelina Children's hospital in April, we learned that she was holding around 100mls of urine in her bladder after going for a wee. This can increase the chance of infections.
Hi My daughter also had retension she was told to self catheterise from the age of 8. Has your child ever had to do this or were you given other advice?
My daughter is only 5, 6 in October. We trialled a tens machine for 9weeks from our appt in April to help with overactive bladder but it didn't work, we are now going to trial a nee medication, but I cant remember the name, its been a long day at the hospital today. Oh and we were advised on posture on toilet and 2 hourly routine. Doc we saw today mentioned when I asked about what we do if new meds doesn't work, said we might do a test with a catheter in, to measure and monitor how bladder functions and pressure of urine. What were the steps before your daughter self catheterised?
We have had a test that said she had an over active bladder, we have now just Bought a watch that has 8 alarms to tell her to go to the toilet, hopping this helps especially at school! Xx
Yes she started learning to catheterise so she was able to empty herself fully and also to have the pressure tests done. This is when they found out about the reflux and her overactive bladder. They also found out on a Mag 3 test she has a very small right kidney which she could of been born with.
It's good you are at this stage of getting help and your daughter is still so young.
The first hospital I went to discharged us when my daughter was 5 told us not to worry she is perfectly normal it will all go away in a year or so.
We never seeked proper help untill she was 7 or 8, the local contenance nurse has been a massive support to us and has helped me push for everything, especially help at school.
I wish you all the best with your daughter and I am happy to share any more information if it helps.
Yeah we have had this test and they said she may keep a small amount, they have suggested double voiding but this is hard for us to encourage as she wants to go to the toilet alone. Xx
Doc we saw today, advised to try morning and night to double void. I understand completely the predicament of encouraging and independence,
Well factory farm raised chicken commonly contains 'Superbugs' these days that are 'resistant' to many antibiotics. You can contract bladder infections from contaminated food. How often is she eating chicken? A different type of antibiotic might need to be tried.
We do eat chicken regularly but always cooked to the correct temperatures ... to kill bacteria. I've never thought of this before. Thanks for the reply xx
Sounds like she might benefit from self catheterisation to ensure that she fully empties and reduce the reservoir of wee that maybe causing the infections. Im surprised the hospital havent suggested it.
Well couldn't leave it any longer had to hand in a sample to the doctors and low and behold another infection so have got a 3 day course and once that is finished another lower dose of nightly antibiotics to start. The doctor I spoke to thinks i that the hospital shouldn't be expecting my daughter to fight the infections herself, so I'll see what they say when I go back on Friday
my daughter is 9 and has many similar problems. we go to a clinic which she has attended for 3 years and they identified at the start that she was constipated. sounds straightforward but it hasnt been at all. currently she has problems with foecal soiling and wetting during day and night. she has has about 10 uti's since the spring and is now resistant to amoxicyllin and trimethoprim. she is on a laxitive, a stimulant. 2 antibiotics and a bladder relaxant, and her cindition appears to be steadily worsening. she has had loads of tests which have identified one kudney slightly larger than the other, kidney scarring, a stretched bowel, and possible evidence of reflux. i seem to spend all day badgering her to drink water and go to the loo and because of the uti's she is often grumpy and objects to my pestering her. i feel so sorry for her as it is impacting on her quality of life and sometimes on her social life, activities and friendships.
i expect to see her nurse or consultant again in sept - i was thinki g asking for a 2nd opinion but it is already so complicated im concerned that might make it worse .....
i would be interested to see how your daughters story progresses as she and you seem to have experienced similar frustrations.
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