day 32 on max dose…: hello all, we are on day 32 of max... - ERIC

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day 32 on max dose…

ToddlerPoo profile image
9 Replies

hello all, we are on day 32 of max dose (8 sachets) and still not there, have senna (5ml) at night for 20 days also; 3yr old and history of withholding which is still doing now even on this regime. Is this unusual to take so long? We have had some huge watery gushes in last few days but also some thick sludgy stuff which seems fresh poo, she’s still eating normally so I don’t understand how it would ever get to rusty tea? Advice please!

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ToddlerPoo
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9 Replies
Marc3456 profile image
Marc3456

Very similar experience here so we can relate. Day 39 max dose movicol (10) and picasulphate. Some watery tea but not more than 2 in a row and no consistent pattern. Will have to stop at some point as our son (4.5) is in school and it's v. hard work getting movicol into him before and after school. We've been advised we need to see watery tea for 2 days. I can't believe we're ever going to get there but also don't want to stop without getting there, having invested iso much effort!

Purplepanda1981 profile image
Purplepanda1981 in reply toMarc3456

We've been sending a bottle of made up laxido into school and asking them to put it in the fridge and give it to our son in the afternoon to help get all his sachets in and it's working well.

Hfox82 profile image
Hfox82

have you spoken to your paediatrician? This sounda like a long time to be disimpacting. They say sometimes you don’t get to rusty tea ??

Yaleamanda profile image
Yaleamanda

Speak to your health care professional

Michymoo85 profile image
Michymoo85

I would go to the GP today and get some advice. It sounds like you have got there now and can begin the maintenance dose but please see a health professional and see what they say 🙂

Marc3456 profile image
Marc3456

We're getting regular advice from continence service and have been urged to keep going as long as possible to get rusty tea but we've decided to go maintenance now as we've all had enough. Seems there is a lot of variance in advice given by paediatricians Gps and continence nurses

ToddlerPoo profile image
ToddlerPoo in reply toMarc3456

thank you, we have made the same decision, it’s a lot for a just turned 3yr old and it’s been 6wks already since we started, i hope your situation will settle soon too

ERIC-Charity profile image
ERIC-CharityPartner

Dear ToddlerPoo We would recommend going back to your health care provider for your child to be assessed and progress reviewed, to decide on next steps and whether medications need adjusting. Do make sure that she is also drinking 900-1000ml per day , spread evenly through the day, in addition to the laxatives. best wishes, ERIC

ToddlerPoo profile image
ToddlerPoo in reply toERIC-Charity

Thanks - yes we will do that

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