Hi, my 7 year old son has been soiling since potty training at 3. He's been on movicol for the last 18 months, initially to clear out the impaction and since then is on a low dose to keep everything soft. He's not constipated now (although he was when he was younger) but still soils himself almost daily, sometimes several times a day. His main problem seems to be that he hates actually going to the toilet. We have to remind him that he needs to go which invariably ends up with him bursting into tears/screaming/lashing out. He seems to be mentally unable to get past this fear/revulsion of the toilet and we don't know how to help him. We've tried everything from charts and reward systems to full on bribery and nothing seems to be able to get him over it. He will disappear into his bedroom rather than just go to the toilet and it's breaking my heart. We were seeing a pediatric consultant last year but we moved house and had to be discharged. We've been waiting for an appointment here with a paediatric continence specialist since January and have been told we won't be seen for another few months due to long waiting lists. Our GP is no help.
Is there anyone who has had experience with their child having an extreme reaction to the toilet? Any advice would be very gratefully received!