Hi there,we have been battling this for a year now,the first sign I knew there was a problem was when my son started to soil and then his bowel movements were so big he would block the toilet!!!he then told me he was only opening his bowels once a week.I think it has happened from starting secondary school and with them being so strict about going to the toilet.We went to the doctors who prescribed enemas which they should not have done,took advice and told to change to movicol,we have had several disempactions,altered doses of movicol and senna 10 mls added.we just do not seem to be getting anywhere.The school have not been very supportive,he asked to go to the toilet,got told no and bless his heart wet himself.He text me and told me what had happened,I went and picked him up,third time this has happened,another boy told him he smelt I was so upset to see him so upset.His form tutor called apologised and the teacher called me to apologise.i told her she has no idea of the damage she could do and she has no understanding of the impact this has on our family on a day to day basis,I don't think anybody does. She burst into tears and couldn't be more sorry.I said she needed to apologise to my son.I have to think about where we are going,who we go with,he can't sleep over no ones.
We are under a consultant who told me one day it will just stop.I understand that but I am so worried about him being bullied.it is not a good age for this to be happening .W e went through a stage of wetting because it is irritating his bladder.When he drinks more this stops it happening so much.I try not to get cross because I know it is not his fault but sometimes when you come into a room and can smell poo And he has no idea he is sitting In it and his brothers are moaning at him.I have had to make him wear paper pants in the evening because the soiling is so bad it's hard to wash the pants and the smell out.I am changing my job so I am there when he finishes school because if we are off work and keep saying to him to utilise the toilet it helps.
Sorry for ranting but sometimes I feel so upset and no one understands,they keep saying it's his diet and can't understand how he can not know he smells of poo and sit in it,I'm worn out trying to explain so we stay at home more now .I phoned school nurse for advice who tell me they do not deal with bowels unbelievable!! Every day he is at school I am worried but he has to have his education what I really want to do is have a month where I am at home with him but Unfortunately that is not an option.
My son gets cross with my husband and I for keep getting at him,we are not we are trying to help him but it is affecting our relationship with him I wish there was a quick fix but it is a time consuming situation.thanks for reading x