12 year old brother with soiling problems

[Lm94]

So this is my first post on here...

I have twin brothers who will be 12 in a few weeks, R ( with the problem) has been like this for a few years and M (is totally fine with his bowels). They have just started first year at high school, We have took R to the gp and continance nurse so many times but just keep getting movical. He has been advised to have two in the morning and two at night but he is still having accidents at school which has led to the bullying becoming worse now that his old bullies have told other kids in school, it has started to take a toll on his twin as the bullies are also making comments to him. After every meal he sits on the loo for 20 mins and nothing but once he is relaxed in his room that’s when it happens, he just doesn’t get that feeling when you know you need a poo. It is getting to the point where he is refusing to go to school, even though his support teacher and school nurse knows of everything. My mum is at her wit ends and other parents are saying it’s down to the parenting. Has anyone been in the same or similar situation

[SallyandPaul]

Bless you all. What a kind sibling you are to be posting this. It is definitely not poor parenting. I have three grown up sons, fostered 48 children and none of them had this issue. It's my adopted daughter who is now nine and she has been suffering for nearly six years. Things have improved somewhat but she still soils nearly every day. We are under a consultant at the moment and await a follow up appointment. It sound like he might need a disimpaction if he hasn't done one. Also senokot helps with the movicol. If you haven't already have a look at the pooh nurses video it's so helpful and perhaps get a consultant appointment. Remember it is definitely NOT his fault. Good luck and if you need to ask me anything please feel free.

[Lm94 in reply to SallyandPaul]

Thank you so much for your reply I am currently researching the disimpaction, going to show my mum and little brother the video later. I will be phoning the gp first thing tomorrow morning for an appointment

[SallyandPaul in reply to Lm94]

Hi me again you don't need to see a consultant to do a disimpaction. Your GP can explain what to do, it's also on the movicol instructions.

[Lm94 in reply to SallyandPaul]

Our gp is useless they just keep saying that he is lazy and won’t even try to go on the loo. I didnt know they were instructions on it, he takes movical 2 in the morning and at night.

[SallyandPaul in reply to Lm94]

Sounds like you need to see a different GP. In the movicol box you should have a leaflet,information for patient. Under the heading faecal impaction it talks about daily number of sachets and says day 1, 4 sachets and goes up to 12. When stools become watery diarrhoea you can go to a maintenance dose of maybe 2/3 sachets a day where poohs are normal size.You probably need to see a decent GP first or maybe a pharmacist.

[Lm94 in reply to SallyandPaul]

At first he was on 3 sachets a day morning, lunch and night but been changed to 2 morning and 2 night. I was talking to my mum last night about everything, she said that it was the paediatric doctor that said he is just lazy so I’m going to make sure he gets another doctor to speak to.

[SallyandPaul in reply to Lm94]

Well done honey, it certainly sounds like he needs some more help. Probably , like my daughter , over time because of the constipation he has a loss of sensation.

[Surrey05]

I feel for you and your family.

We are currently going through this at the moment my son is also 12. His now in year 8 things haven’t changed. R has had disimpactions which help for a small time but end up back where we stared he also has senokot with the movicol.

Has school put a care plan in place.

My son is refusing to go to school. Have had Ewo on my case over his attendance. No doubt I’ll be getting a phone call today if not next week.

He has been suffering from this since he was born.

I’ve been advised from CAMHS to give these people a call they help parents/Carers (SSIASS).

I have all the documents in my email but I’m not sure how I post them over too you.

You are the first person who has posted something on here that is such a similar

Situation to my sons Good luck stay in touch xx

[Lm94 in reply to Surrey05]

He hasn’t had any disimpactions just always getting movical from the doctors. His support teacher at school calls either myself or my mum to let us know if he has had any problems at school, she is also going to be bringing the kids into her office and explain that R has a problem that isn’t his fault and will be phoning the parents to explain that bullying isn’t called for. I researched a lot yesterday and showed my mum so we are going to be back at the doctors for more help. Thank you for the reply

[Surrey05 in reply to Lm94]

You need to ask for a referral to see a paediatric consultant . To do a disimpaction

[Lm94 in reply to Surrey05]

He has been to them before but was never given a disimpaction

[Nanoiu]

I am in New Zealand and have tried Movicol and Senokot with my boy with so so results. Poo is not guaranteed with top-down medication. I was exasperated. Finally I started using store bought enemas, Microlax 5 ml and this stuff ensures my kid will poop before leaving for school and therefore not have accidents. He is 6 years old. If you take the poo out each morning, it will keep the rectum empty till next morning. No more accidents. Now to get him off the enemas and get him to initiate pooing on his own, we bought the Clean Kid Manual. It’s the best info on encopresis you can find. Google it. But first step is to disimpact, then have a poo each morning, with enema if necessary. We also use solid suppository but I find it only expels some of the poo. Monitor the consistency of the poo. My son still takes one sachet of Movicol in the evening and does not soil because of it. Also read about bag enemas, high volume enemas, to clear out more then just the rectum, higher up in the colon. Best of luck!

[Lktoday]

My son is nearly 12 and now in high school and has has this problem since the age of 4, he is under 2 paediatricians and a clinical psychologist and takes 9 movicol, 10ml senna and 10ml dulcolax a day. He has disimpactions with picolax (usually a bowel prep used for colonoscopy patients) which is pretty effective. He also has peristeen which is a bowel washout/irrigation solution but he’s not willing to use it (I can empathise). I work for a GP and have done for a very time (since before my son was born) Consultants DO make a difference, they can order tests and have access to a number of resources GPs dont, they also have experience of seeing other children in a similar position so can offer solutions and guidance. Get a consultant opinion, a paediatrician if not a paediatric gastroenterologist. They’ve seen a lot of this before and can make suggestions GPs cant.