More control : I have some days clear of... - Epilepsy Action

Epilepsy Action

3,095 members1,174 posts

More control

GillSans profile image
1 Reply

I have some days clear of fits. Other days I have several slumps, or occasional tonic clonic fits caused by bright light, loud noise or more emotion, both good and bad, roughly 25 times each month. An epilepsy specialist suggested I take more vitamin D after having a blood test.

I may notice a trigger, like twitches in my cheeks, but sometimes I am not aware that the epilepsy fit lasts for less than a few seconds and am able to carry on as though nothing has happened. If I am standing when it happens I fall, causing body bruising. I wear a cycle crash helmet all the time during the day to protect my head. I take Keppra, Fycompa and Clobazam and have a VNS device. Any other ideas?

Written by
GillSans profile image
GillSans
To view profiles and participate in discussions please or .
Read more about...
1 Reply
EpilepsyAction1 profile image
EpilepsyAction1PartnerEpilepsy Action

Hi

It sounds like you have some bad days due to your epilepsy.

I hope you hear from others in this community, as sharing information and experiences can be a really good idea. Can I just check you also know about our online community, forum4e? This is a very active community for people with epilepsy and carers of people with epilepsy. It’s another good way to talk to other people in a similar situation.

forum.epilepsy.org.uk/

I’m also wondering if you know about our local groups and coffee and chat groups that are in various places around the country? This is also a good way to make contact with others living with the condition. epilepsy.org.uk/near-me

If we can be of any more help, please feel free to contact us directly. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.

Regards

Diane

Epilepsy Action Helpline Team

Not what you're looking for?

You may also like...

Using cannabis to control my epilepsy

Is there anyone else not taking the pills and is using CBD oil or cannabis to control there...
Sickanimal profile image

Seizure control

Hello last year I was diagnosed with vasa vagal syncope which I now take a tablet for to reduce the...
Katiex profile image

Pip and epilepsy

I have just been given my pip decision and I find it strange, the have acknowledge that I have...
Wintersbite profile image

Tired of memory loss and being a joke

Epilepsy has really affected my memory in the last 8 years. I’m constantly putting my foot in it....
MAPB profile image

Focal motor seizure disorder

Has anyone else experienced or have more knowledge about this form of epilepsy? I was diagnosed by...

Moderation team

EA-DT profile image
EA-DTModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.