More control : I have some days clear of... - Epilepsy Action

Epilepsy Action

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More control

GillSans profile image

I have some days clear of fits. Other days I have several slumps, or occasional tonic clonic fits caused by bright light, loud noise or more emotion, both good and bad, roughly 25 times each month. An epilepsy specialist suggested I take more vitamin D after having a blood test.

I may notice a trigger, like twitches in my cheeks, but sometimes I am not aware that the epilepsy fit lasts for less than a few seconds and am able to carry on as though nothing has happened. If I am standing when it happens I fall, causing body bruising. I wear a cycle crash helmet all the time during the day to protect my head. I take Keppra, Fycompa and Clobazam and have a VNS device. Any other ideas?

1 Reply


It sounds like you have some bad days due to your epilepsy.

I hope you hear from others in this community, as sharing information and experiences can be a really good idea. Can I just check you also know about our online community, forum4e? This is a very active community for people with epilepsy and carers of people with epilepsy. It’s another good way to talk to other people in a similar situation.

I’m also wondering if you know about our local groups and coffee and chat groups that are in various places around the country? This is also a good way to make contact with others living with the condition.

If we can be of any more help, please feel free to contact us directly. You can either email or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.



Epilepsy Action Helpline Team

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