Experiences with

Clobazam

Absences were quickly controlled with AED medication, but took 10 years to find clobazam. GP stopped clobazam in 2006 due to concerns over benzodiazepines, and within 3 weeks had 2 nocturnal gran mal seizures plus post-ictal behaviour issues.

Clobazam 10 started in that year till 2012, in the meantime other problems like hypertension, dyslipidemia developed. In 2012 I had episodes of AF. Frisium stopped. In 2016 an episode of very short duration of seizure took place.

Kepra, unsure of the other 2, and recently added clobazam. At one point she was opening her eyes a bit but now nothing since adding this last one. She's also had a tracheostomy. Stable, and everything heart wise healing as it should.

I am taking lamitrogine, clobazam , topirimate and lacosimade for my seizures. Plus leveithtroxine for my thyroid. I also now have problems with my red blood cells too high , heamotology looking into this at hospital.

The Neuro dept at my hospital said my own consultant was away and decided to ‘top me up’ with 10mg of Clobazam with my evening dose of Lamictal. I was told this was a short term drug and that I’ll be reviewed again and that was 2 months ago. I’m now on my 2 box.

I’m still on Lamotrigine but now have a top up with clobazam.

Hospital put me straight onto clobazam and lomotrogine but will end up just on lomotrogine.

I now take keppra twice a day and clobazam at night which fingers crossed eel to have stabilised things. Although my last seizure was only 4 weeks ago i have gone longer without one. I also have midazolam as my seizures tend to last anywhere from 5 to 15 minutes

My suicidal thoughts are increasing.My doctor wants to add 10mg clobazam. I was on kepra seven years ago. My seizures were controlled then we stop it. Then doctor started Lamotrigine. Should I start kepra again or add clobazam with Lamotrigine. Please guide

Anyone suffering from Keppra & Clobazam have had a lot of issues with these medications constipation, lack of appetite ,stomach twisting fatigue ,no energy, confusion, memory problems.

I take Keppra, Fycompa and Clobazam and have a VNS device. Any other ideas?

I take Keppra, Fycompa and Clobazam and have a VNS device. Any other ideas?

I’m currently on zonisamide, clobazam & Keppra which I have fully been on for 2 1/2 months. Hadn’t appreciated the possible side effects of Keppra which I experienced & still have moments, having switched from lamotrigine (happy pill feeling).

He is taking clobazam, keppra, tegretol and epilim and the best control we have had is one daily for a month at the same time of day.

Hi, I’ve been living with epilepsy for around 18 years and have been taking Keppra and Clobazam for around 16 (1000mg and 10mg respectively, everyday). A colleague of mine who also has epilepsy said I should be having regular liver tests...is this correct?

The Department of Health has updated us on the situation with clobazam supply problems in the UK. Auden McKenzie has stopped making generic clobazam tablets and passed its licence to Accord Healthcare. Clobazam tablets made by Accord are currently available.

AEDs during an open-label safety study in 81 patients (39 adults, 42 children) with refractory epilepsy.[25] As doses of CBD were increased, the researchers noted an increase in the serum levels of topiramate (P<.01), rufinamide (P<.01), and desmethylclobazam (P<.01) and a decrease in the levels of clobazam

My husband is taking Keppra, Phenytoin and Clobazam. he suffers from stomach ache and burping particularly after sleeping in the afternoon. He takes the Phenytoin at lunchtime. Has anybody suffered the same effects and could it be linked to any of the medication?

Because of this they have also put me on citalopram twice daily and clobazam to help me relax at night.Sorry its going on a bit but not been well lately. Three weeks ago my MD sent me to hospital as he thought I was having a heart attack.m Luckily it wasn`t .

Hi, I have just been prescribed clobazam as an add-on drug, to take whenever I feel I am at high risk of having a seizure eg. not had much sleep (my main trigger), or if I have sickness or diarrhea that may have caused my normal medication (epilim chrono) to pass out of my system without being absorbed