Hi all... Sorry in advance if this is long I just needed somewhere to offload!
I am 23 and have finally been diagnosed with endo after suffering from the same symptoms since I was 10 years old. I also have cysts on my ovaries and fibroids which have altered the shape of my womb. I had a lap 2 weeks ago following which I had a period (although not due one) which was excruciatingly painful. I really didn't think the pain could get any worse but apparently I was wrong. Oddly the pain which has always been in the exact same place for the last 13 years(left lower abdomen) seemed to have moved towards my back/bum...really hard to explain but I'm not sure if the change in the position was what made it more difficult to cope with?
Anyway, my consultant has decided to treat me with injections for 6 months rather than having more surgery as I am just about to finish university.He also wants me to have regular scans to monitor my fibroids as he says it is unusual for someone my age to have them- I have had no explanation of the implications of this. I am feeling extremely overwhelmed with everything. Happy to finally have a diagnosis but terrified that this is something I am stuck with for life and fed up with pain controlling my life. very wary of hormonal treatment as fake menopause does not sound much fun and I'm already rather emotional!
To make everything worse my bf of 6 years is not supporting me as I would have hoped. I lean on him for everything and he is normally fantastic but for some reason he doesn't seem to understand how much this is affecting me- especially emotionally. Despite seeng me in pain he seems to dismiss this and doesn't understand the impact it has on my life. It sounds petty but the fact that he forgets when my consultations are(even though ive been worrying about them) and not asking how I feel or what's happened is really affecting me. I'm wondering how I will ever get him to understand and if I can go through life without his support on this. I think the fact it's a girls problem and that he's read that its quite common makes him feel its not that much of a big deal.
I am also going to have to transfer to the NHS as my parents healthcare will not cover me once I finish uni. I am terrified that after finally talking to someone who understands after years of getting nowhere I will be back to square one.
Sorry that was even longer than I thought it would be! Any general advice would be very much appreciated.