So, after asking to move hospitals, and finally being successful (see earlier posts) I requested my medical notes and low and behold, you would not believe the amount of things they don't tell you. My GP wrote to my surgeon in 2008 with concerns I had endo, I had 3 different scans that indicated either endometriotic cysts or complex cysts with query endometriosis. I have only been told of any of my issues on the right side, but during my first lap in 2008, a cyst and adhesions were removed from the left.
This is hardly surpising since I had my fallopian tube removed when I was 15 but wasn't told until the surgey in 2008 (4 years later).
I had also had issues with some of the doctors bedside manner, one calling me immature for requesting to have my ovary removed (that is not attached to my womb and susceptible to recurrent complex cysts, and I know now is riddled with endometriosis), shouting at me, patronising me and fobbing me off to the pain management clinic, depsite there being, from the scan he ordered, two complex cysts sitting on one ovary.
Another dr advised me that being down a fallopian tube did not affect my fertility, which I question with knowledge from my medical science degree, to which she faltered and gave the the actual stats of a 30-40% reduction. In the same consultation, she put me on prostap, advised me there were no symptoms of it again I questinos, her repsonse - to put my on HRT to combat these non-symptoms.
I have never put in a complaint against the NHS. I think it is about time I did.