Help explaining it all to others and yourself...

[Lillil]

Hey ladies,

Hope you are all having a managable day. I had a horrific evening, but thanks to having my tens on all night things have calmed. I thought I would use some of my energy that has returned by posting links i have found useful since becoming diagnosed...when you are in pain the last thing you want to be doing is searching!

So excuse repeated posts as I copy and paste but i hope you find them useful...

X

A good way to understand how you partner, friends and family think about your endo...

endometriosis.org/support/p...

[Lillil]

The gold standard for endo treatment

rcog.org.uk/files/rcog-corp...

[Lillil]

Facts about endo;

endometriosis.org/resources...

The endo diet;

endo-resolved.com/diet.html

About gnrh drugs;

endometriosis.org/treatment...

What is zoladex;

drugs.com/zoladex.html

Diagnosis of endo;

endo-resolved.com/diagnosis...

When others don't understand endo;

endometriosis.org/resources...

Gluten free diet food types list;

the-gluten-free-diet.com/gl...

The best...video on how to explain endo...

vimeo.com/m/20910143

Obviously please judge for yourself the reliability and accuracy of these sites, I don't take responsibility that they contain correct information. They have just been useful to me on my journey and hope they would help others on theirs xxx

[squidgy]

That is a good idea of yours.

I liked reading the one "when others don't understand". Can relate to some of the issues highlighted and reminded me to not bottle up but to talk to my husband, family, friends about it. Was helpful in that to explain to people how it has changed me and my life and to say for example: I cannot go shopping for 6 hours but on a good day I can do 1hr. But I also liked how it said this is no fixed suggestion as people may still not understand.

Once again Thanks. x

[Impatient]

I wish we could sticky some blogs or questions to the top of the forum. So we could readily access the links when needed.

bsge.org.uk/ec-BSGE-accredi...

is the list of UK accredited endo centres

Cervical pain (smears and sex) explained

clearpassage.com/the-role-o...

website on endo in french, german spanish italian and english

endometriose.ch/en/was-ist-...

endo pain

endometriosispain.info/

endo & bowels/intestines - bit of an academic piece but v. interesting too

mjwcooper.com.au/patient-in...

[Lillil]

Thank you, am glad they can be of some help.

I couldn't agree more Impatient, I would LOVE to help make a pack or leaflet for those awaiting and newly diagnosed.

It scares me as a health professional, how difficult I have found the process and I know how the system works! There are so many ladies out their who don't have the information or knowledge and therefore accept all thats said to them. Which I have done in areas unknown to me also. I am so greatful for the advice we have recieved on here I wish we could share it further x

[squidgy]

Totally agree with what Lillil and impatient have said x

[mcnielal]

Thanks for the links ladies! Super helpful!

[Lillil in reply to mcnielal]

Glad they helped x