I’ve just found out my endo has returned with gusto. In 2008 had a lap that needed a couple of surgeons and 8 hrs to complete... I received great care up until that point from a specialist surgeon in the North West and thankfully had a great GP who helped achieve a fast diagnosis.
However, the after care has been patchy, I've seen a different junior Dr every endo clinic (every 6 mths) they do not have time to read notes before I go, and it has taken me 2 yrs to persuade them that it is back. They would not believe me, as I was being 'managed' with continuous pill and coil. Small things like unmoveable no negotiation with appointments/ wait times of 6 months/ and appointment delays of hours. His receptionist deserves a whole blog for how rude she can be. Being a self-employed contractor and wedding florist - getting an appointment when I am supposed to be dressing a wedding that I cannot move with 5 months’ notice is not that friendly.
Finally, I pushed for a MRI at my Sept appointment and this has revealed it has returned – I had to wait 5 months to get an appointment for the results. My last appointment (this week) the new Dr just said its back and you have 3 options - but when pushed could not help me decide which... I know that my surgeon has a great reputation but I don't feel very cared for, listened to, and feel I have to fight to be heard. There is this feeling about the clinic that we as patients should be grateful to be seen at all. Should I try to move to someone else before embarking on the surgery or just put up with the bad for the good? Is this just what it is like for us? Can anyone recommend a NHS specialist in the North West I might move to?
FYI I want kids but since the Dr had not read my notes her first option was a hysterectomy… I tried to push to see if I should give up the ghost re kids but she said she could not comment. I know the Drs have their hands tied behind their back sometimes but I need help, and to get this situation managed.
Love and thanks x