i haven't posted for quite a while but have received a copy of the letter that the consultant sent to my GP, and i'm really confused.
Going back over my symptoms etc, i have been seeing my GP for 2 years which is when i felt i could not cope any longer with how much my periods were affecting my life, and the pain that i was in.
my periods had always been a problem but i just accepted that it was normal, but the last 10 yrs things became so bad and my family life and work suffered so much i knew i had to get some help.
periods had become very erratic, so heavy i couldn't leave the bathroom sometimes let alone the house, pain that was similar to labour like pains (its the only thing i have to compare it to) - when not on period i always have a tugging/pulling feeling in my lower left pelvis, that would range from an ache to full on doubling over pains, always have lower left back pain, these pains do get worse if i become constipated, but then bowel movements can range from constipation to diahhrea, painful sex and so many more symptoms but i think you get the picture.
anyway, my gp (who is wonderful) sent me for a scan, they found i had a thickened endometrium and sent me for a hysteroscopy and biopsy on the lining. at the time of the hysteroscopy they suggested that if biopsy came back normal then the next treatment offered would be a mirena, so i thought whilst i was there i may as well have it fitted so i did. the biopsy was normal (i thought it would be) but the mirena caused me many issues, the pain was unreal, the bleeding was all over the place and i kept being told give it time, and i have. inthe meantime my doctor sent me for an mri and they found a large cyst on my left ovary, so they said this solved the left pelvic pain, and that this cyst they suspected was a chocolate cyst. i also have fibroids but consultant said they're fine.
i was refused a laparoscopy due to my weight, which i completely understand, however i did not like the way i was spoken to, and it was implied that my weight was causing these problems, which i knew the weight wasnt helping but it wasnt the cause.
since all that though at the beginning of the year, i have shed 4 1/2 stone, i am still overweight but i have reduced my BMI to required safe BMI to perform the lap. even with the weight loss i am still suffering the same problems, i am a completely different person from what i was, i exercise everyday, even though i am sometimes in alot of pain, but i stick to mainly walking fast and some swimming, i am much fitter and the weight loss is steady and i shall continue.
i last seenthe consultant in july, he agreed to remove the mirena and do an ablation, themirena has caused so many issues and has not helped overall although i can say it has slightly lightened the flow of my periods but pain wise it has only increased it. i have had some hair thinning too, connected i'm not sure but the first three months when the mirena went in the amount of hair i shed was unreal.
after a really bad week last week, pain wise, you know one of those weeks where you just want to give up, i went to see my gp to see if they would consider doing the lap at the same time as the ablation, she said she would ask.
i received the copy of the hospital letter today and will put it here:
Thank you for your recent letter about this woman who was seen by my colleague in the summer. She is currently on the waiting list for endometrial ablation.
It would be possible to carry out a diagnostic laparoscopy at the same time. I suppose it is possible that she may have endometriosis, but on balance i think it is not very likely.
It would be very helpful if she could continue losing weight, as this will help reduce the risks of surgery and anaesthesia.
i cannot work out if they are agreeing to do the lap at the same time or not, and also why put she may possibly have endo but not likely, this man has not even met me, it seems none of them have looked through my symptoms, there is a reason i get so much pain, and they have done all other ways of investigating and now this is the only way.
it has upset me a little again, it makes me feel like a fraud, the pain and bleeding i experience is not anywhere near normal, all i want is to try and live some sort of normal life, which is why i hope and pray i do not have endo, but surely it must be something that has to be ruled out.
i'm sorry its ended up being a long one, really tried not to be xxx