Im sorry but just need to vent some feelings about the lack of understanding some people have about endo. I'm sure this is not entirely their fault but it none the less makes it very difficult for people that suffer from it when they make misinformed comments.
I was diagnosed with Endo four years ago after a laparoscopy. It had previously been diagnosed as an inflamed colon! And have several cysts which were treated. I am somewhat fortunate that one of my bosses suffered from endo & underwent a hysterectomy, so someone at work had an understanding of what i was going through.
I have recently been off work due to chronic pain and extreme fatigue, luckily I have an appointment with my consultant on the 25th. I had been on a course of Prostap which was good for me however for the last four months the endo paind has come back with a vengeance.
I have had to hear comments (second hand & direct) describing endo as a sore tummy. I know there are different stages of endo and people experience different levels of pain. One person I know claims to have endo and has recently made a comment (comparing her symptoms to mine) saying that she manages the pain better.
This dissapoints me, not because I look for any sympathy for suffering this.Far from it. The disease annoys me that it takes the control away from me and I struggle with that. I feel that there really needs to be more done to get info out there about endo and pages like this are fantastic, although if you dont know what it is you wont look for these pages or info.
My endo pain is with me pretty much all the time at varying levels of pain. Smetimes manaeable, sometimes unbereable. And from researching this since I was diagnosed I know I am not alone. But outwith the support from all you, it is an incredibly lonely disease. And we are quite often judged when they dont understand.
Rant over, thanks for listening :o) xx