first gyno appt

[Weeshaz1509]

so I had my first gyno appt today and I think I’ve left feeling abit more confused than when I first went in! 🙈 The doctor I felt was very vague, she did however put me on the waiting list for a laparoscopy but also told me it’s 50/50 if they’ll see anything which left me feeling totally deflated. I also had my bloods taken by my GP in February and they came back with a raised marker for my ovaries, she told me she didn’t understand why they’d taken bloods but surely if something’s raised then that a sure sign there’s something wrong even it’s not endo?

Anyone had a similar situation happen? I just feel abit lost! 🙈🫠

[CrochetDogMom]

Hey there, sorry to hear you're feeling a bit lost! It can be like that sometimes at the beginning of your journey. I think they don't want to give any sort of diagnosis as it can't be diagnosed truly until the Lap usually. Even then, sometimes you can have Endo and they just can't see any on the day.

I found it really helpful to look through the NHS app when I first saw the gyno. It usually has all the referrals and results from anything you have. I was able to read my referral to gyno and see scan results which helped me know more. If you haven't got the app I highly recommend downloading it!

Hoping you get answers soon!

[Weeshaz1509 in reply to CrochetDogMom]

Hi thanks for messaging back.

I had a wee look for that app but I don’t think the NHS Scotland app is the same sort of thing, it just seems to tell you about medication and stuff.

I’m hoping that I don’t wait too long for blood results to come back and hopefully they’ll still be showing something. Although I was also told yesterday that if my bloods come back raised again I’ll be sent for a scan of my ovaries but if that’s clear then that’ll be it. Am I being crazy for thinking that’s not right? 🤯

[CrochetDogMom in reply to Weeshaz1509]

Oh I didn't realise you was in Scotland. May be worth doing a bit of clicking around as it took me a while to find on the NHS App.

I had a scan of my ovaries which showed adhesion with my ovary and womb. Which then triggered further investigations. They shouldn't just discharge you if there is nothing as endo isn't always indicated on a scan.

If nothing shows but you are having symptoms you can quote the NICE guidelines for Endometriosis. You're on the waiting list for a Lap which is good but it is a very long waiting list for most I believe. It may be they can give you some medications to manage symptoms in the mean time whilst waiting.

[Weeshaz1509 in reply to CrochetDogMom]

Hi, yeah I’ll maybe just download the app and see if there’s anything at all of any help on it! Thanks for the recommendation! 👍🏼

I know endo doesn’t show up on a scan so I’m not really 100% sure why I’d be getting that, kinda sounds like a tick box sorta thing, if your bloods come back raised then you have to have one sorta thing? But they might also be looking for something else because raised markers can be caused by all sorts. I had a scan done of my ovaries last year and it was clear so she said she thinks if I have another it would be clear too but surely a lot can change in a year?

I just feel like I’ve so many more questions now but you don’t always think of them until you’re at home. Typical! 🙈🫠

I’ll have to look up the NICE guidelines, I’ve never heard of them before either!

Thank you for replying though! Means a lot ☺️

[Rainbow2468]

Hi if was a raised level via a ca 125 blood test, endometriosis can cause this. Hope you get better answers soon. Sending you a big hug x 🤗

[Weeshaz1509 in reply to Rainbow2468]

I’m not 100% sure what the blood test was called all I know is when my GP phoned me he said my marker was raised for my ovaries (they had done bloods for loads of things all at one time) and when I had my gyno appt I’m certain she called it the cancer tumor marker or something along those lines? Tbh all I heard was cancer and I started to panic! 🙈 as you do! But when I said to her do I have cancer she wasn’t really able to give me a straight yes or no which baffled me even more! I’m sure if they thought I did then they would have been abit more prompt with appts and stuff but she just didn’t reassure me much. She told me nothing in medicine is 100%. I suppose they just have to rule out a lot of other stuff first maybe?

Thanks for replying ☺️

[Rainbow2468 in reply to Weeshaz1509]

Hi yes it's sounds like the ca125 test to me, it's shocking that they don't explain things properly, i was told mine was raised amd could be an ovarian tumour which freaked me out. But i had a internal ultrasound booked, and it was only a week away thankfully, where it was properly explained, and i was told i had nothing to worry about. I hope you get better answers soon. Sending safe hugs 🤗❤️I had loads of tests to and they all came back clear x

[velowatching]

I wouldn't worry too much about the 50/50 chance of finding anything. That figure was told to me consistently both before and after my lap (where they found endo!). I actually mentioned to a medical professional after my lap that I felt people had been too dismissive of endo prior to surgery only to be told no, that was fair, there was only a 50% chance they'd find anything 😂

Also getting bloods taken seems sensible to me! It can help rule out other things if nothing else!

[Weeshaz1509 in reply to velowatching]

Hi, thanks for replying.

I know I shouldn’t worry about the 50/50 chance because I had heard that sometimes it can be hard to see because it’s so small etc but it just made me feel like she didn’t think I even had it. I know I’m definitely over thinking it but at least I’ll know what expect from any further appts going forward! 😂