Conflicting results/diagnoses

[ArchiePug]

I’ve had symptoms of endo for over 30 years. Endo was eventually diagnosed via laparoscopy in 2010 (after being told I didn’t have it following an internal exam!). More recently, after a vaginal ultrasound about 18 months/2 years ago I was told I have adenomyosis. Starting seeing a consultant 12 months for a treatment plan - he agreed it’s adenomyosis post internal exam.

The coil and Zoladex didn’t suit me so the next step was an MRI.

Fast forward to today where I got MRI results that showed no evidence of endo or Adeno.

I know there’s endo - I saw the photos in 2010 but it was surprising and frustrating to get the results today. I assume it means I don’t have big, infiltrating endo but I’ve had to tell myself it’s not in my head and just because it wasn’t seen on the scan, it doen’t mean it’s not there.

Next it’s a laparoscopy to really see what’s happening and a potential ovary removal. The adeno…who knows. It feels like that was a misdiagnosis?!

Has anyone else had a similar experience? Were you emotional about it? I cried on the consultant!

[Selfel]

Could you ask that your MRI is ready by a specialist radiologist? Some of them specialize in gynae scans. Sometimes it isn't the scan that's not showing anything, but the person looking at it not reading it properly.

[ArchiePug in reply to Selfel]

Thank you - that’s a good point. I think I’ll start by asking the consultant’s secretary to send me the images 😊