I'm at a loss : I have stage four deep... - Endometriosis UK

Endometriosis UK

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I'm at a loss

myprettymess profile image
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I have stage four deep infiltrating endometriosis, early menopause and they have found cancer cells ( not cancer yet but the cells ) so I'm on provera for the cells , nothing for the early menopause and shop pain killers I have had more people in the area over the past year but nothing is getting sorted , they just say we'll you have this and that and just leave me to it there are days I can't get out of bed the pain is so bad , I'm not working at the moment, pip turned down my claim , I'm a single mum so no support network, just feel very low as the moment, unsure of the point of this post really just needed to write it down I quess x

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myprettymess
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Kelpiestryder profile image
Kelpiestryder

oooh I can so relate!

Woman’s health is just completely useless. Just want you to know you’re not alone…

The last 3 years I’ve had a smear test and they keep coming back with high risk hpv cells. I keep asking my dr what I can do or if they can do anything and I’m always met with a ‘nothing, just wait until next year’. Right so I’m just supposed to sit on this diagnosis and wait until the cells form into cancer and only then will you do something, probably by the time it’s too late!?

It’s terrifying. It’s disheartening. And it’s just not fair. But it’s nationwide, so many woman are let down by the system. We’re all here!

Keep writing it down, keep reaching out on here! This group has been a lifeline for me in the past couple months! Even if I don’t end up having ‘endo’ I can relate to so many woman on here and have found great support so as to not feel alone or as terrified!

You got this and Weve got you! Big hugs 💚🖤

Stressedoutwoman profile image
Stressedoutwoman

hi I have endo too had to have ivf as it was really bad but that’s 22 years ago on menopause now and on hrt and I’m getting lots of funny pains and symptoms

My stomach is very painful bloated and I have bowel issues

They say I have ibs but I’m wondering if it’s the endo due to the hrt I’m awaiting an internal ultra sound scan to see if anything shows up as I feel like I’m getting no where I also suffer with anxiety so that just makes everything worse worrying all the time

I feel your pain

Let hope things improve

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