I'm looking for some help

[Music2222]

I've been diagnosed with endometriosis since November 2023 but have been struggling with it long before. I underwent a laparoscopy done by an endometriosis specialist to diagnose and remove endo. When I had the surgery quite alot of endo was found they said they removed all that they could see at the time. For a little while my symptoms got better I was doing alot better however now it's just gone back to the way it was before surgery. I'm completely lost and feel helpless as I am being let down by all My doctors yet again. I have tried everything to help myself yet nothing works. I've ended up in a&e most recently I was there for around 60 hours yet recieved no help. I was prescribed iv painkillers to help with the pain yet no one could cannulate me so I recieved none of this. Instead i got given the same pain relief I take at home. Other than this I was provided with nothing. The pain management team at the hospital refused to see me and said I should call a pain clinic instead. I do have a pelvic pain team with a different hospital however it is quite far away and the wait times for appointments are always very long. I have multiple other chronic illnesses besides endometriosis and I just feel I have no support with any of them. I just don't want to be in pain anymore and really don't know what to do as I am constantly being let down by doctors. Any help or advice would be greatly appreciated thanks.

[KittyTherapy]

Hi,

Sorry your going through this, sounds horrific. Just to ask, have you been re-referred back to gynae? X

[Music2222 in reply to KittyTherapy]

Yes I am still under gynae just not at my local hospital as they won't do anything for me as apparently there's nothing they can do x

[KittyTherapy in reply to Music2222]

Has it been a while since you've seen the consultant? Wonder if it would make a difference if you contacted the patient advice & liaison service (PALS) saying about your experiences and ask to see the consultant about your symptoms and pain control x

[Music2222 in reply to KittyTherapy]

I have regular phone call appointments with them but there is only so much they can do over the phone. I do really appreciate them and what they do as they were who I got my diagnosis from as my local hospital was just dismissing me unfortunately. It's just hard to see them in person as they are quite far from where i live. But essentially yes I have not seen anyone in person for a very long time. I've seen people at my local hospital when being admitted but I get no help from them. I have looked into talking to PALS I just done even know where to start as I've had so many bad experiences with so many different doctors and consultants. But I think it is something I should definitely do tysm