I have recently been diagnosed with Endometriosis (so new I still have to keep checking the spelling, ha ha).
To try and cut a long story short, I recently went to hospital to have a large dermoid cyst removed from my Ovary. When they did the surgery they cut me open and where surprised to find that I had what they referred to as 'severe' Endometriosis which had fused all my organs together in there, including my bowel being stuck onto the back of my womb.
I'm lucky they where really nice doctors and tried to explain everything in simple ways to me, while I sat taking notes as it was all a bit much to take in, I was afterall expecting to have the cyst removed and go on my merry way better and pain free, not be told I had something else to deal with :\
The consultant seemed rather shocked it had got so severe and it had never been picked up on and asked if I had ever been to the doctors with heavy periods and pain, which I have on several occasions but have always just been told 'some women have heavy periods' and had my pill swapped and changed around.
They said they probably won't be able to offer me any surgery for it as it would be too much of a risk on my bowel and other organs as they said it was hard to tell where one thing ended and another started it was that fused together.
They wanted to make sure I was healed from this op and they had time to do tests on the cyst they removed and write up there reports so my appointment to go back isn't until mid May, but being new to all this I wondered what people would recommend I need to be asking at my appointment? I want to make sure I get as much info as I can to help me deal with it and thought people who have been diagnosed longer might be more clued up on things that people often forget to ask...
Sorry, that was meant to be a long story cut short, ha ha, thank you if you read all of that, and also thanks in advance if you have any advise for me