Post surgery

[A-Elizabeth]

In May last year, after clear scans, I was told I could have diagnostic surgery (and excision) if I wanted but was consistently told the negatives and it felt like they were trying to put me off it. I chose against this and decided to go for a laparoscopy… I’m glad I did as I know have an answer. I had a laparoscopy in December last year, and was told I have moderate Endo all on my left side. During surgery, they cut a blood vessel and I lost a lot of blood.

I had to request a follow up appointment with my gynaecologist where she told me they didn’t remove the endo because ‘the surgery was already taking too long’ and ‘it’s in a difficult place’. She has told me I shouldn’t opt for excision because it would be a long and intense surgery. She also said it wouldn’t necessarily fix anything and that I can’t ‘keep going back’ for more surgery if it reappears.

What are others experiences? Is any of this true? Should I get a second opinion?

I don’t know who to believe

[RedCat24]

I'm sorry you feel like this and was spoken to this way. Was this with a general gynae. In a way she's right, it can come bak and u can need multiple surgery's. Excision is better than ablation (iv had ablation - currently waiting to see if mine is bak then will be another op if it has) Excision gets into the root and takes it all away ablation is just killing the top and not down to the root. Some people have to have laps every couple of years, it depends how it effects your quality of life, I struggle everyday x

[Cailleach]

I think you should ask for a second opinion. If you have moderate endo then it is only going to get worse and cause you further problems. Were you offered any hormone treatment to help with symptoms?

If the endo is ‘ in a difficult place’ so that it can’t be removed, you could ask about referral to a specialist (BSGE) service.

There is a Facebook group wher you can ask about recommendations for individual gynaecologists in your area, and get better advice than I can give: Endometriosis Support UK.

Hope this helps x