Endometriosis and UTI’s

[endthemetriosis]

I’ve struggled for some time with reoccurring uti’s/uti symptoms. In October, I started with a uti and was prescribed antibiotics. Since then, I have taken 11 courses of antibiotics to try and get rid of the infection. I have endometriosis and the doctor I last seen said that endo doesn’t cause uti symptoms. Has or does anyone with endometriosis suffer with urinary issues/infections? It is seriously getting me down. I feel like the doctors aren’t listening to me and don’t actually care. I get palmed off at every appointment. I’m currently off work due to the pain and discomfort, as well as this affecting my mental wellbeing.

[scooby24]

Hi, I recently found out I have endo and have struggled with recurrent UTIs for many years (I do also have problems with my urological anatomy though which is a separate issue). My understanding is that if endometriosis is present in the bladder it can cause UTI-like symptoms such as burning, bladder pain and frequency but I'm unsure if it can actually cause UTIs.

I totally empathise with what you're going through, it took me so long to feel like I was finally being listened to. UTIs so often get brushed off as another thing that women just 'have to put up with' but I know how much pain they can cause.

Please advocate for yourself in getting a referral to urology for the recurrent infections. I know how hard this can be but having this many so frequently is not normal. Last time I checked, the NICE guidelines stated that GPs should refer patients if they experience 2 or more UTIs within 6 months or 3 or more within 12 months. They will want evidence though through urine samples which test positive for infection-causing bacteria so make sure you send a sample every time your symptoms develop.

Hope you get some relief soon <3

[Chartolfrey]

Hi so for years the dr wouldnt see me and just gave me antibiotics. Last year through lap surgery i was diagnosed for severe endo, had mri 6 weeks later and ive got endo, adeo, cysts and fibroids and bits all stuck together. Awaiting a hysterectomy. So i now bugged and bugged the dr to dip my wee as my endo nurse says the womb,bowel and bladder are all so close so if u have a flare or pain your inflammed so its pushing and causing the issues.

I also changed to drinking at least 500ml of lemon barley a day, cut out caffiene and take cranberry pill 1 time a day.

Fingers crossed ive not had a uti im at 31 weeks, i also got my nurse to erite to dr so 1 time a week i leave a sample at recwption amd a nurse dips it and uploads my results to nhs app. I dont normally like bugging nhs but after 8 weeks in a row of antibiotics without being seen i lost 1 stone in weighr and then the sample they sent was clear but still issues.

I also take buscopan to relax the bladder spasms

[Lemoncake95]

Hello yes endometriosis does cause uti's. I suffer with stage 4 endometriosis and do get episodes of recurrent uti's needing antibiotics also causing spasms and lower abdominal cramps.