Treatment options.

[Mumof2girl]

Hi,

I have recently been diagnosed with Endometriosis, tissues on Uterus and have an ovarian cyst . The cyst was found during an ultra sound last year but the endometriosis tissues more recently following going private and seeing an gynaecologist , and a mri scan.

she has recommended either going on the mini pill or having the coil fitted to manage the symptoms. Or a laparoscopy .

I would say I have chronic pelvic pain and back pain for the last few months, gets worse after exercise.no issues with my cycle or periods themselves.

I am wondering what people’s experiences have been with the mini pill and coil.i I don’t really want to start something that will affect my periods or cause major side effects as I know the pill sometimes can. Or is it worth just having the laparoscopy?

Thank you in advance.

[Illyria_1]

I had the jaydess coil (smaller then mirena) which helped for two years, switched to the mirena after as it can last up to 5 years I believe. Both were recommend as they have low hormone levels. Fitting them wasn't pleasant but for me it really did help and there were months without a period. When I did have a period, it was less painful. Only removed it as trying to conceive, but otherwise I still would have had the coil.

[Mumof2girl in reply to Illyria_1]

Hi, thank you for your reply and sharing your experience with the coil. I have never used this option before and would consider this rather than the mini pill if necessary. It’s good to know you’ve had more or less a positive experience with it.

[EndoCoeliac_Woman]

HiHow old are you? And what type of exercise?

I started having symptoms at 24. Got laparoscopy. 4 months later symptoms came back. Started the pill with only progesterone. Had nausea. Moved to a normal one with both estrogen and progesterone. Had night sweats, mood swings pain during ovulation (even if the pill stops that, so very weird).

Currently I'm on no hormonal treatment and I'm amazing. My game changer was alcol free e sugar free diet. And also balanced diet (always pritein, and fat when eating carbs) as insulin spikes promote inflammation. So basically antiinflammatory diet. I train in the gym. Sometimes get a bit sore after, bit not always, so I believe depends on the moment of the period as well.

Let me know if you have further questions 😊

[Mumof2girl in reply to EndoCoeliac_Woman]

Hi, thank you for your reply. This is really helpful. I am 37, I also just train in the gym and do Bootcamp type classes-certain exercises such as ab work is becoming painful. I am abit reluctant to go on the pill because of potential side effects, it is why I didn’t start it after having my 2 girls. I am not planning on having anymore children. It seems it’s going to be trial and error but I am going to start with changes in my diet too as you’ve suggested. I’m glad you have found the best options for you and are managing better.

[Hannah818 in reply to EndoCoeliac_Woman]

Hi, can I ask about anti inflammation diet and cutting out sugar? I didn't know insulin spikes led to inflammation I've cut out white bread and stodgy foods which has helped with inflammation and bowel issues which I think are related to endometriosis they found large endometria on ultrasound near ovary . Should I reduce or cut out sugar ( I have major sweet tooth syndrome and comfort eat when feeling down!) and what else should I cut down on ?

I've started taking tumeric pills with black pepper to help with inflammation and have introduced cooler foods like cucumber, melon etc.

Thank you in advance for any advice

[EndoCoeliac_Woman in reply to Hannah818]

Hi!So cutting sugars is the best way to keep insulin at bay. But I'm a sweet tooth as well so I understand your worry. What is important to avoid insulin spikes is to eat sugars/carbohydrates with a source of fat and one of protein. So for example, potatoes or rice or bread with olive oil or avocado or seeds (look for sources of omega3 and 6) and meat or legumes or eggs or fish (salmon is both protein and fat). This is for main meals.

To not give up on sweet snacks you can try things like Yogurt with fruit and nuts, or those bars made mainly of nuts and kept together with honey. What is really important is to cut biscuits and other super refined sweets (mars, snickers). Chocolate is also good, at least 70% though...

I know sounds hard. But I can tell you that if you 'detox' for 3 weeks you will notice that you have less cravings and also your sweet threshold reduces (you start not liking super sweet stuff). So then you can start having some sometimes again.

Last thing. For me it's hard to stick on the no sugar diet as well. But I can notice that if I go back eating them too often I start having pain again. It takes only few days to get inflammation, and then another few days to get back to normal. For this reason I tried to eat them as 'once a week treat', so that I satisfy my heart without harming my body.

I hope it helps. Don't hesitate to reach out if you have other questions.

[Hannah818 in reply to EndoCoeliac_Woman]

Thank you so much , it makes sense, will try it over next few weeks. I've been upping intake of fruit, nuts, natural yogurt, and realised it all tastes great and can be quite filling too think il write up a food plan to help me reduce the sugary refined foods and might have to go back to 'out of sight of of mind ' with the chocolate bars !

[EndoCoeliac_Woman in reply to Hannah818]

The rule is simple: the less ingredients the better. Nice bars that are very healthy are the Nakd (based on dates). As I told you, if you feel in need of sugars is fine, just try to couple them with healthy fats. Let me know how's going!🥰

[Mumof2girl]

Hi,

Thanks both for this further information.i have already made some changes and I found I had 2-3 days of less or no pain on these days. However it seems to have come back with ea vengeance the last 2 days more so because in due on my period. But I will keep at it, determined to mange these symptoms via diet and other natural remedies.x