Hormone treatment or Hysterectomy - Endometriosis UK

Endometriosis UK

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Hormone treatment or Hysterectomy

Endo2617 profile image
4 Replies

Hi

I have been back and forth to gynecologist for over 5 years now i have endometriosis and more recently have been diagnosed with endometrial hyperplasia with cysts and cystic spaces, today I had an appointment to go through treatment. Due to having a laparoscopy only a year ago they don't really want to do another one so soon. Hormone treatment has been offered GnRH analogues, reading online it doesn't work for everyone and the side effects are wild, my main concern being mental health as I already struggle with that. A hysterectomy was also mentioned and it was said because of my age he would recommend trying the hormone treatment first, but he would also happily put me forward for a hysterectomy but to keep my ovaries. I am 33 years old I do have 1 child and I know I am unable to have more. I feel as though I am prolonging the inevitable but at the same time I am scared because it is such a big operation but also something I have thought about for a while now due to pain, mental health and my cycles. Any advise would be great! TIA x

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Endo2617
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E-ZEE profile image
E-ZEE

Was you 1st laproscopy is excession or ablation?It sounds it was ablation.Are u getting treatment from registerend endometriosis centre or general op-gyne?

Endo2617 profile image
Endo2617 in reply toE-ZEE

Hi yes it was ablation and general op-gyne x

E-ZEE profile image
E-ZEE in reply toEndo2617

I dont know,where u based.This is the biggest mistake to go to general op-gyne and went through ablation.If you are in UK see BSGC endometriosis centre in your area .If not in UK find what ever the reowned endo there.General op gyne ruin you by doing ablation.Please please dont go to them again.Find endo centre ,specialist endo surgeon and go through excession if they offer u.It is the life changing surgery and give u a relief about 5 yrs.Good luck×××If u need any further advise give me a shout.

Sunset-lady profile image
Sunset-lady

The GnRH injections can be taken with addback HRT which makes it a very different experience. You'll be waiting a while for a hysterectomy and this could help you and give you an indication of how you'll manage a hysterectomy as you'll be in chemical menopause x

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