I've just had a second ultrasound since my last surgery in January where I opted to have all of my endo, fibroids, cysts removed but not have a hysterectomy. The pain I was struggling with hasn't gone away, so I'm more and more convinced that it's the adenomyosis causing it. When I had my ultrasound, I was told that my uterus is quite enlarged, which probably also explains why I always look like I'm a few months pregnant. I hold my core in tight so it's not obvious when I'm out and about, but that causes more pain as I now struggle to really relax my pelvic muscles.
I'm always on the lookout for something different to try. I've been put on pregabalin a few weeks ago, and sometimes that helps, but not most of the time. I'm on 125mg and will be on the maximum dose they will prescribe of 150 mg at the weekend, so I'm not convinced it's going to do enough.
I saw someone on insta mention uterine artery embolisation, which I've never heard of, so did a bit of research. There's NICE guidance from 2013 on using it to treat adenomyosis, which made me think it's something I'd like to explore further so plan to talk to my consultant about it. I just wondered if anyone has ever been offered / had this to treat their adeno and whether it was helpful? I'm still holding back on the hysterectomy. There's no practical reason for this - I'm 45, no kids for various reasons, and although I'd have liked them it's not going to happen, but I'm just not ready to have it all whipped out.