colonoscopy results.: Hello all you lovely... - Endometriosis UK

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colonoscopy results.

Joonaspryte profile image
11 Replies

Hello all you lovely ladies 😊😊😘

I had a colonoscopy in July.

This colonoscopy was absolute agony, and during the procedure the consultant said the pain was due to my bowels being stuck together. (My bowel movements are also a problem, painful, with problems going, where I feel I need to go but can’t , then i suddenly need to go very urgently.)

I assume this is due the the bowels being stuck together and was hoping something could be done about this.

I have been waiting for the results of this procedure in anticipation since that time. The main concern was if there was any endometriosis of course.

I rang his secretary last Thursday 24th October which was about 14 weeks post procedure, only to be told she was away. The lady on the phone said the results had been read and I was to be seen in 2-3 months, but that in reality it was more likely to be 18 months.

I asked her when I will be able to know what my results myself? She said when I am seen, so that could be anything between 2-18 months.

she said sorry but this is the way it was.

Surely this cannot be the case?

I'm sure I'm within my rights to be told the results once they have been reviewed.

I’ve decided I’m going to send him an email questioning this.

Has anyone else experienced this?

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Joonaspryte profile image
Joonaspryte
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11 Replies
AllthatGlitters profile image
AllthatGlitters

Hello I have got results from my GP when having a hospital procedure, can you go down this route as it should be quicker? X

Joonaspryte profile image
Joonaspryte in reply toAllthatGlitters

Thanks you. Ill call the gp on monday 👍🙂

Moon_maiden profile image
Moon_maiden

Hi

Request a copy of your records and the results from the hospital, it’s free and there should be a form on the website, I’m always doing it.

It’ll likely be Endo and or adhesions sticking the bowel and really they should do an MRI if you haven’t had one, see if GP can arrange it. We have to be very proactive these days and push.

GPs rarely suggest anything unless it’s really urgent so I’m always asking, just this week he’s done a referral and organised a blood test but I had to ask.

Joonaspryte profile image
Joonaspryte in reply toMoon_maiden

I actually asked my gyno for an mri and she agreed, its for an abdomen and pelvic mri, but its put as none urgent.

Moon_maiden profile image
Moon_maiden in reply toJoonaspryte

Typical, hope you aren’t waiting long.

Stomacron profile image
Stomacron

Sorry to hear of your painful colonoscopy; I have to concur with you, colonoscopies are painful if you have endometriosis because of the adhesions. Let it be useful information for others, colonoscopies can be very painful for those suffering from endometriosis, additionally they can also cause damage such as fistulae by stretching areas that are adhering to other organs which is what happened to me and resulted in me having to be given a stoma to manage my output. In the UK, the NHS usually offer anesthesia as an option. If you suspect you have endometriosis I would suggest you opt for anesthesia.

Lily1986 profile image
Lily1986

Hello

I’m so sorry you’ve had this experience.

I can relate, in the past they forgot to give me the gas and air and like yourself my bowel is stuck together and it was beyond excrutiating.

I had one last month and requested to be put under anaesthetic this time, was far better not knowing anything about it. Just so you know should you need another this can be requested.

I’m horrified by the wait times you’ve been told, did they give any results at all after the procedure? Or is the lab results?

I got mine last week and I thought waiting 4 weeks was bad enough.

You should not be left waiting so long for something so important.

One way to obtain your full medical records including any scan images or procedure photos/ videos, is to contact the hospitals legal team and complete a ‘subject access request’. The legal team aren’t just there to deal with claims, as I believed for a long time. I do this all the time now because there’s so much about my body I wasn’t told about when waiting 15 years to be diagnosed.

The other option is to write to your MP this has got me the most action and response in the past. There’s health watch and PALs too.

It’s just awful how we’re treated, it’s worse now more than ever and very worrying for the future.

Best wishes to you, please feel free to message me anytime ❤️

Lofty1589 profile image
Lofty1589

You can put in a Subject Access Request with your hospital, specifically requesting the report from this procedure. If ever I’m left inthe dark, I do this so I know exactly what was seen

Joonaspryte profile image
Joonaspryte

I rang the same useless woman again to ask for email address, to get email to colonoscopist she said oh I'll give you mine and pass it on to him if needed! If needed?? The email is for him not her! 🤬🤬🤬🤬

Anyway I called the GP and the receptionist was brilliant and she said the results were there and she was sorting it so I can pick them up tomorrow. She was shocked by the stand in secretary s attitude.

Anyway I should know tomorrow 👍😊

Joonaspryte profile image
Joonaspryte in reply toJoonaspryte

Update, the only results the GP had were the old preliminary ones I came out of the hospital wuth, so I'm still none the wiser 😕😕😕😕😕😕

go to Pals and kick up a bloody stink

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