Endo flare up

[Hick20]

Hello (first time posting)

I’m due to have a pre op assessment on Tuesday the 15th for laparoscopy surgery to confirm endometriosis, I have been having symptoms for years in mid July this year symptoms got significantly worse every few weeks I have been told these could be flare ups but I just wondered how long do peoples flare ups typically last my pain is there all the time but chronic pains have been lasting over a week maybe even two and soon as I get back on my feet for a few weeks the chronic pains start again and I have to be back off work as it is crippling I just wondered is this normal?

[RedCat24]

Everyone is different but I'm in a similar position iv constantly got pelvic pain on the left side intermittent right, I flare up really bad during ovulating and the pain gets worse for about a week it may calm for about 3 days but then I'm due on my period and it flares again to the worst point

[Hick20 in reply to RedCat24]

Mine is exactly the same but on the right side I did have an ovarian cyst on that side that just went and the hospital wouldn’t do anything further luckily my GP had already referred me to either try a private hospital or NHS she said the private one could decline me but the doctor I saw is convinced endometriosis so I’m hoping I can get a surgery date tomorrow after my pre op x

[RedCat24 in reply to Hick20]

Been in exactly same situation lovely. I hope it goes the way you want it to and you get some answer x

[Teeflyers]

I suffer the same, and I have been off work now since the beginning of September. Can't go back because the more I move, the worse the pain gets. If you look at my posts, it will explain my story. I have now got a pro op and operation book. I hope that this shows endo so I can get diagnosed. My gynaecologist thinks I have it but have to have the op to see if I definitely have it xx

[DutchVanderling]

sounds very familiar to me - I have it as a full pain in the background that will come to the fore in stabbing and burning every few weeks or at best couple of months. They last between days to months. It’s how long is a piece of string I think from one woman to another. I’m so sorry you’re experiencing a flare now - they’re damn evil things.

[Teeflyers in reply to DutchVanderling]

I experience the same issues too. It's crazy to think there are so many woman out there suffering like us. If I didn't see this website I would have never guessed I could have endometriosis. I know the pain I have isn't normal but never heard of endo. I haven't been diagnosed yet but hoping to once I have had my surgery x

[Hick20 in reply to DutchVanderling]

I feel like unless people are experiencing these pains they don’t understand how painful and how consistent the pain is I have received comments previously that the chronic pains can’t be lasting that long and has a really negative impact mentally, hopefully I shouldn’t have to go wait too long for surgery and my GP had referred me to a chronic pain clinic and given me some mefanamic acid to try not sure if it will help but willing to try anything x

[DutchVanderling in reply to Hick20]

I know what you mean. I had the ‘it can’t be *that* bad’ it can’t last that long’ - it’s mad how many people who are supposed to be looking out for you don’t believe you because they aren’t experiencing it.

It truly sucks and hope you can get some help soon.