Endo and adenomyosis

[Dolphin1045]

There has been background endo and background adenomyosis found on my mri scan I don't really know what it means, what the treatment for these are I've done some googling but not very helpful I don't have an appointment with my consultant for another month

Has any got any experience with this?

[Tangoandmax]

Hello, I have both Endo and Adeno. They usually recommend hormonal treatment for both, specifically the coil, other hormonal treatment may be reccomended depending on level of disease. Progesterone only seems to be the preferred option, but it doesn’t work for everyone (me being one of them, I take combined pill - not that it’s doing much 😔). Endo can be removed during a laparoscopy, but unfortunately the only way to get rid of Adenomyosis is removal of the uterus. Alternatively I think symptoms may ease after the menopause but I’m not completely sure on that.

Hope this helps!

[Chartolfrey]

Ive been diagnosed with both among other things and im now on the monthly injections and waiting for a full pelvic clear out

[Finechina]

Morning,

adenomyosisadviceassociatio...

I found this link useful particularly their Facebook page.

If it is background hopefully it hasn't advanced so any treatment offered will help you.

Look at your diet as well.

I had endo, which I had a removal of right ovary last year but then I was diagnosised with ando in July this year as well.

Not sure of your age...I tried everything the GP or gynae team could give me including the coil however nothing made any difference to me of late. I am 49 so my option was to wait for menopause or hysterectomy. I had a hysterectomy 2 weeks ago, which proved difficult as endo was surrounding bladder and bowel. They didn't know this until I was under. All I can say is in 2 weeks I feel a changed women.

Be clear on what background means as obviously endo keeps growing and ensure you are regularly check afterwards for years to come. You can never stop it but you can certain try hormonal supplements/ medication to reduce symptoms.

All the best. Xx

[PeriMenoEndo]

I hope you get the info you need. I also have both conditions which is really difficult when all the other parts of you are screaming out for HRT! My bladder can’t hack the coil and I look pregnant from ovulation with the adenomyosis so considering going on the pill at 43, or asking to try osphemifene for the genitourinary symptoms.

Finechina Did you get urinary symptoms with the adeno? Did you have a full hysterectomy including ovaries?

Dolphin1045 while you’re waiting to see the consultant read up on diet and supplements on the Lara Briden blog or in her book The Period Repair Manual. Before I got a chronic UTI for years back I found these strategies really helped me manage the endo and improved my periods.

Good luck to anyone reading this and be kind to yourselves! 💚