Mirena coil and Endo relief?

[Laura_1984]

Just had a call from the Endo Nurse as although previously declined the offer, I’m now backed in to a corner with my health that I’ve agreed to have the Mirena coil inserted to assist with my ‘now’ regular flare ups (& waiting to be listed for a hysterectomy). How have others found it? Does it work and give some relief?

[Willow456]

Hi Laura

The Mirena helped me and removed a lot of my symptoms until around 18 months ago and my coil would have been around 3 years old. Since then everything is back but it was a great help with managing my symptons, saw gyno today who’s asked me to change my coil to see if I get the same relief.

[RosieFalkor]

Sorry Laura but for me it made things much, much worse. The side effects of Mirena (tachycardia, migraines, numbness and tingling, extreme anxiety) landed me in hospital for 5 days. My Endo is very widespread so I kept getting diaphragm and bladder symptoms anyway. It took months to get it removed and I felt awful. I much prefer Endo!

[Laura_1984 in reply to RosieFalkor]

Hi Rosie, thank you for your honesty. I feel so backed in to a corner with it all at the moment as there is nothing else I’ve got left to try (other than surgery and I’m on the ever growing w/list).

Can I just ask what you meant about your diaphragm? Only because a lot of my pain is upper left side, almost under my breast leading down to my groin. I’m always so worried that mine has gone elsewhere.

[RosieFalkor in reply to Laura_1984]

Yes I do get pain there, also in my back, shoulder and neck which I think is diaphragm pain. I’m also on a huge hysterectomy waiting list, it’s been over a year now. 😔

My theory with the Mirena is that it’s localised so it reduces uterus pain but if the Endo has spread it doesn’t help with that.

[Laura_1984 in reply to RosieFalkor]

It’s the body swelling I’m also struggling with. My whole abdomen is huge and I seem to be carrying fluid in other places. 2nd flare up within 1month and I’m just fed up with it all now. 😔😔