Migraines: Does anyone else get migraines... - Endometriosis UK

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Migraines

Chartolfrey profile image
10 Replies

Does anyone else get migraines with endo or could it be to do with xoledex putting me in medical menopause.Ive had 5 jabs and not to bad but since this jab the hot flushes are worse and been up most of the night as had awful migraine.

It took 2 paracetamol and 2 tramadol to help, dark room with no sound.

Cold flannel across ny head and eyes

Its my 1st migraine and was awful so any tips for manage them aswell till i see my endo nurse in 2 weeks

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Chartolfrey profile image
Chartolfrey
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10 Replies
Amyrebecca246 profile image
Amyrebecca246

Hi, I'm a chronic migraine sufferer, like many illnesses it can be case of trial and error to see what works for you. I sometimes find ibuprofen works better than paracetamol, or failing that I've got paramol (over the counter painkiller) which helps (alongside prescribed tablets). I find kool'n'soothe strips helpful as they have a cooling effect but I can still try and get home/do things with it on. However I find the 4head type sticks don't work for me (although others swear by them). Again cool, dark room always helps, and sleep -sometimes I can just have a quick nap but other times I'm sleeping for hours! My migraines aren't directly linked to my endo however they are triggered by hormones (cant take any hormonal birth control and am likely to get a couple for the week I'm on my period). Hope this might give you some other helpful ideas, but I would definitely mention it to the nurse and see if they can give you anything to help.

Zoe3103 profile image
Zoe3103

Hello, I suffer with cluster headaches, I normaly get them as I'm coming on my period or finishing, I'm not on any medication for my endo, iv just put them down to hormones. Iv just recently got the migraine face mask/head wrap that I leave in the fridge and then put on when I can feel the headaches coming, it seems to help with the pain. I also take strong pain relief and lay in a dark quiet room. Iv attached a picture of the migraine cap, hope this helps.

Lady wearing migraine cap
GoodbyeMalcolm profile image
GoodbyeMalcolm

hello. Yes I have migraine headaches which I think is connected to the endo but I’m not totally sure. Like others I think it is hormonal. I only get headaches and not auras or sickness.

I now take sumatriptan and it usually works within 30 minutes. It needs to be prescribed in the first instance. You can also get it over the counter at the pharmacy (in v small quantities) but you have to complete a health form first. Good luck.

rie39 profile image
rie39

Hi , I've had migraine since three years old. Ask for sumatripan. This helps Massively with them. Also worth mentioning that if it gets too much get seen because I had a stroke young. At 42. Good luck and go see your GP.

Chartolfrey profile image
Chartolfrey

Its only happened 1 time but just wanted advice. I will mention it on the 24th when i see my endo nurse next see if they can give me something

Katmcm790 profile image
Katmcm790

Hi! I have never experienced headaches or migraines with my endo until I started Zoladex. I'm on my second injection and it's definitely been a side effect for me (although they aren't too bad generally). I've found it also coincides with how well I've slept or how stressed I am. Rest, quiet and dark are most helpful for me. I hope they get better for you!

Chartolfrey profile image
Chartolfrey in reply toKatmcm790

Thankyou ive been on them 6 months and this is the 1st time. Was really horrible.I have been run down amd stressed with alot going on so maybe that triggered it

Katmcm790 profile image
Katmcm790 in reply toChartolfrey

A perfect storm of stress, being under the weather and hormones. Perhaps it will be a one off. Best to mention it to your nurse in case they can offer anything too.

Chartolfrey profile image
Chartolfrey in reply toKatmcm790

Thankyou i hope just a one off but will mention it to ger in 2 weeks at my next app

Bumblebee11 profile image
Bumblebee11

Hey :)I suffer with migraines and have in the past few months (when my flare ups have been horrific again) have started to have migraines with aura and my vision can be completely gone from anywhere between 2 and 60 minutes....

I have sumatriptan and also aspirin was advised for me to take at the slightest incling of a headache (especially as I work in a science lab).

I really find having a cold head and darkness helps. Ice packs on my head and wet flannels over my eyes.

Really hope everything works out for you and you find what helps xxx

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