Zoladex injections: Ive had 2 doses off... - Endometriosis UK

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Zoladex injections

Annimay43 profile image
19 Replies

Ive had 2 doses off these now 1st one on 25th Feb and last one 22nd March. Ive had awful period like pain, and feel sick all time. Im also on Tibolone HRT to counteract the hormones. Has anyone had any think like pain im getting? I also seem to get migraine couple days after get it, I usually get one every month before my period.

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Annimay43 profile image
Annimay43
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19 Replies
Adventure101 profile image
Adventure101

Hi i am also on zoladex due my 3rd one next week i have also been getting endo pain still, feeling sick, hot flushes and have had a headache nearly everyday since starting them. Am also on tibolone so not sure if the injections, tibolone or endo that are causing symptoms

Annimay43 profile image
Annimay43 in reply to Adventure101

I thought I was imaging things way I was. If this way they both leave us id sooner suffer endo pain. The side effects are awful. X

Adventure101 profile image
Adventure101 in reply to Annimay43

I no for the first month i wasn’t sure if it was because i was recovery from surgery but it just seems to be getting worse rather then better.

Annimay43 profile image
Annimay43 in reply to Adventure101

Waste of time them giving us both medications if not working. I also keep bleeding few days after get injections its so strange not knowing what to do

Adventure101 profile image
Adventure101 in reply to Annimay43

I had them after a lap to remove 2 large cysts and the endo in stomach lining and went for a checkup at 5 weeks my cysts had already grown back and quite large again so they have not done what there supposed to its so frustrating

Annimay43 profile image
Annimay43 in reply to Adventure101

R they going to try doing anything else for u?

Adventure101 profile image
Adventure101 in reply to Annimay43

I am currently waiting to see another specialist hopefully hear something soon

Keke123 profile image
Keke123

You are meant to give it a good 3-6 months before it starts working fully. When I had zoladex it took 3 months until

I was pain free. Your body has to adjust and you have to fully go into the menopause state for the pain to stop.

I mean that was at least my experience. I would stick with to see if it works after then.

Sorry you are still struggling though :(

Annimay43 profile image
Annimay43 in reply to Keke123

Thanks. I think its the side effects and these mood swings are the worst. All want to do is curl up in bed

Angellouise profile image
Angellouise

My daughter has had the lupron shot , she had one month of no pain then it started again. The bleeding is so bad. I hope you find an answer , I don’t know what the answer is . The Gynechologist don’t know what to do. Good luck

Annimay43 profile image
Annimay43 in reply to Angellouise

Have they offered her any surgery?

Angellouise profile image
Angellouise in reply to Annimay43

She had laparoscopic surgery and they didn’t see anything.

Annimay43 profile image
Annimay43 in reply to Angellouise

Oh dear hope they get to bottom of it soon

Angellouise profile image
Angellouise in reply to Annimay43

Thank you

auntcassie profile image
auntcassie

Hi there. I'm having my 3rd Injection next week but since the 2nd injection I have had terrible headaches and feel sick. Don't get me wrong the injection has certainly helped with swelling and period pains to the point it sent me too bed but having this every day I actually don't know what is worse. Im Being prescribed tibolone now to help but am worried the side effects of this. Will the tibolone work? Has anyone taking this and can say I will start fekbg better soon.

Annimay43 profile image
Annimay43 in reply to auntcassie

Im on the tibolone as well im sweating more due to injection and feel tired all time. Everyone seems to be having lot side effects from these drugs :(

Adventure101 profile image
Adventure101 in reply to auntcassie

I have tibolone given after the 2nd injection as side effects were bad cant say that it has helped i feel worse if anything but it works differently for different people i guess

auntcassie profile image
auntcassie

Thanks yeah seems everyone is different but some of the side effects from the zoladex is smiler in most people. What us women have to go through!!!!

Some people can be sensitive to progesterone - I get awful migraines from anything with it in. Am two months into zoladex and using oestrogen only gel but do have to have two weeks of progesterone every three months to reduce risk of womb cancer. Worth discussing the hrt options with your doctor as once I found the right combo things settled quickly. Had hot sweats, sleeplessness, sickness and headaches mainly at first.

Had awful sickness in first month (no hrt until second month) and got some strong anti sickness meds from GP which helps a lot.

Fingers crossed things settle for you soon

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