bleeding won’t stop after first prostap i... - Endometriosis UK

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bleeding won’t stop after first prostap injection

Sara0102 profile image
14 Replies

I had my first 4 weekly injection 4 weeks ago and I am spitting every day I am sick of this anyone else had this it’s freaking me out now

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14 Replies
Avocadolover11 profile image
Avocadolover11

Hello, I had my first Prostap injection a week ago and started bleeding on Thursday, it’s not like a full period but I am still bleeding today, don’t know how long it will last. I have also felt really tired to the point where I don’t want to do anything and my body feels heavy, did you get this as well? How long have you been spotting for? Do you have any other symptoms?

Sara0102 profile image
Sara0102 in reply toAvocadolover11

Hi there thanks for your reply xx

Yes I started bleeding a day later and it’s 4 weeks next week Wednesday and I’m still spitting.. yes ur right it’s not painful but jus bleeding and sometimes it’s dark brown … I feel really tired today it’s unreal I have got headaches with this aswell .. don’t know if I want my second injection

Did u have the 4 weekly one ?? And what Isit for x

Sara0102 profile image
Sara0102 in reply toAvocadolover11

I have headaches .. I feel thirsty a lot and I feel dizzy at times also wake up feeling sick

Avocadolover11 profile image
Avocadolover11 in reply toSara0102

Me too, for me is mainly feeling tired and the spotting mine is currently bright red. Hopefully it gets better! Yes I had the 4 week one, I had it to stop my period as I have an infected endomitrioma. Why did you get it? Is it the 4 week one as well? X

Sara0102 profile image
Sara0102 in reply toAvocadolover11

Yes it’s the 4 week one and it’s for endo and adeno pain I always bleed for 3 weeks out of 4.. its less now but not stopped though 😩😩 my pain was severe I felt like I’m in active labour the the whole past year.. it’s helped with the pain tho.. I’m getting nasty headaches and dizziness I don’t know if I want another 1

Do u have endo then?

Rainbow2468 profile image
Rainbow2468 in reply toAvocadolover11

Hi yes I was like this with my first prostrap injection, then it happened with my seventh but otherwise no bleeding. Do carry on it's definitely worth it x

Sara0102 profile image
Sara0102 in reply toRainbow2468

So when u started your second did things settle down for you?? And did u get headaches etc. ? I’m sat here sobbing away I hate been in my body

Rainbow2468 profile image
Rainbow2468 in reply toSara0102

Hi I totally understand it's just horrendous isn't it. Mine settled down after three and a half weeks, they had previously tried me on the mini pill, and I had eleven weeks of bleeding I'd had enough, I was getting to the point were I didn't want to be here anymore to be honest. I don't recall headaches but, hot flashes and night sweats but I was getting those before anyway. I'm so sorry your suffering so much sending you a big hug xx🤗❤️

MrsPaddingtonBear profile image
MrsPaddingtonBear

Hello

Yes this can be normal. It can be your body adjusting to the prostap. I had zoladex then prostap over 19 months. The zoladex worked great at first then suddenly stopped and my periods returned with a vengeance. 20+ days, 3-7 day break then back again. Switched to prostap and whilst the bleeding lessened, I too was bleeding to some degree daily. This continued for 7 months in total till I finally was given a hysterectomy. By this stage it was an emergency/severely urgent procedure. Sadly we were to find out why, ovaries stuck to pelvic wall, bowel severely stuck to womb resulting in emergency bowel surgery and a colostomy bag being fitted and lumps in womb needing investigation. I nearly didn’t pull through surgery and they told my husband it was 50/50. After nearly 10 hrs I was back on the ward and 11 days later home. I was told in January the lumps were ok and I was cancer free and they had been the reason I couldn’t carry a pregnancy full term and had multiple miscarriages and an ectopic. Only took them 20yrs re to get an answer past it’s just back luck. Still I’m lucky, I’m still here, I did have my little ones inside me for a short spell when the hospital said I’d never get pregnant at all and I’m step mum to 7. Persevere with the prostap it take up to 3 months to work properly, all me decorations are not for everyone and what works for some doesn’t for others but it’s still early days, it’s horrible and annoying but it’s the usual be patient and see what happens scenario with these treatments. Good luck hope they offered or recommend the hrt add back to go with the prostap, I had Evorel patches, work great, rarely have hot flushes, on them for another 5 years.

Sara0102 profile image
Sara0102 in reply toMrsPaddingtonBear

Yes I have the estrogel which I use daily .. x I really feel for you I keep reading ur reply it’s not fair what us women have to go through…

Sara0102 profile image
Sara0102

thanks so much for your detailed reply ..❤️

Yes I suppose il wait it is early days for me . I’m waiting for my keyhole surgery ..

So sad how much you have been through it took 20 years for you ..

R u pain free now finally, ? I really hope you are

MrsPaddingtonBear profile image
MrsPaddingtonBear

Hi

Not doing too bad just the extreme tiredness. The colostomy is a lot to deal with some days but apart from that best thing I did having surgery. You will get there you’ve got this we are stronger than we could ever imagine

Sunset-lady profile image
Sunset-lady in reply toMrsPaddingtonBear

Have they not taken your colostomy bag away yet? I thought it was just for six months? We were in for our operations the same week so I remember everything you went through x

Sunset-lady profile image
Sunset-lady

Be patient as I bled for nearly 2 and a half months then eventually it calmed down. It runs out early for me so I have to have it every 9 weeks but without it I bleed all the time x

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