Well it's been a while since I posted on here. I hope everyone is keeping as well as possible.
When I was diagnosed with endo some 8 years or so ago, I rather naively thought it had been 'fixed' by surgery...but then more surgery, and even more surgery, and oh some more surgery later and I realised that it wasn't like that for me. It's all very frustrating. Grrr! I wish endo could be obliterated, beamed into space, sent off to another planet and eradicated.
But it can't. Not that easily.
And so, sometimes, in the midst of all this, perhaps trying to recall some of the more bizarre moments helps because frankly, it can all get a bit much. Here's my top 5 list (special thanks to Becs & Aaron for inspiration on this):
1) Not knowing what to do about the..err...'garden'..prior to bowel resection surgery...decided to save the surgeon a job and shaved it all off - was a bit of a surprise for the surgeon I think!
2) Anyone had a defaecating proctogram? Probably the most embarrassing scan I have ever had - 4/5 people in the room watching me take a dump with radioactive goo up my bottom...
3) Getting stuck in traffic on the M25, no service station to hand and arriving at the hospital with a catheter bag so full that my knee looked fit to explode, not being able to walk properly and laughing so much about it that the receptionist didn't know what to think...
4) The moment my catheter bag escaped from the bottom of my leg in M&S...
5) Rectal exams - horrible things. Will never forget one surgeon's enthusiasm for my bottom - 'oooh that's lovely, really good' - probably not the thing to say when doing one of these examinations!
This is a horrid disease so if there are moments when we can laugh, I think that can only be a good thing.
Take care everyone