Had an appointment with the bowel surgeon taday as have stage 4 endo on my bowels uterus & in my abdominal cavity (also told today some on my rectum). Was told at my last hospital appointment that I would need major surgery to help.
Today I went to the bowel surgeon- got told he didn't want to operate until it gets to such stage as I absolutely can't take it any more & have to have it (which is now!!!!) He'd asked to see me urgently so I presumed I would be having my op done soon. Instead I was fobbed off with "oh we'll try pain management first then wait until you absolutely have to have the surgery"
I am so upset- I told him that this was ruining my life, I was in constant pain, I had been in hospital ect but all I got was "hmm yes it does sound unpleasant". I even showed him my prescription that I had just picked up- a huge bag of morphine, tramadol, co dydramol, dosulepin & codeine & paracetamol, as well as all my other tablets. He said that pain management would probably give me more medication & painkillers to help with the pain & in the meantime they will keep an eye on the situation.
When I came out I burst into tears & when I told my dad & fiance they were furious- dad thinks I should get a second opinion & my fiance is telling me to go back to the gp tomorrow to tell them I can't take it anymore. It's so rediculous- I can barely do anything- cant go out much, sex is agony, constant pain, toilet problems... yet I just feel like I am being fobbed off. I am so angry & can't stop crying- why would they tell me I need surgery but refuse to do it until it's gotten to the stage where it's too much for me? I feel so let down by the healthcare system & just don't know what to do. Any advice?