letter following MRI states there is “a little bit of thickening on part of the pelvis at the back of womb”

[Chryzstina10]

any ideas? When I saw the consultant he didn’t go into any detail and just said it didn’t tell us much so he’s going to speak with surgeon.

I left very confused and a little blindsided as now feel I should have been given the opportunity to ask questions.

Has anyone had this before. I’m in so much discomfort this month. Sciatica is unbearable and have so much discomfort and pressure in my rectum.

I didn’t originally google thickening however I have today and worried it’s indicative of something more sinister.

Just some reassurance would be great 😌

Thank you

[Lornalost89]

Hi. I was the same, left completely baffled by my MRI report and lack of information from my appointment. I found a charity The Eve Appeal / ask eve. And although they specialise in Gynaecology Cancers they offer a service where they answer any gyne related questions. I sent them a copy of My report and they put it all into basic English for me and advised me on things to ask/ follow up on. I honestly feel in the last 12 months I've had more clear information from Ask Eve than I have any other health professional I've reached spoken with.

Just to add they are Gyne Nurses who answer the questions and more then qualified to discuss any issues with.

Maybe reach out and see of they can help xx

[Chryzstina10 in reply to Lornalost89]

Thank you!

How do I obtain a copy of my report?

Iv only had a summary letter from the consultants that just confirmed mild adenomyosis and mentioned thickening which in some cases is indicative of endometriosis and that he would discuss further when I saw him. I got in, sat down and he said it didn’t really answer any questions and that he’s going to speak with surgeon. I just said ok and that was that 🙈

Thanks for your reply x

[Lornalost89 in reply to Chryzstina10]

I was given a copy of mine at my last appointment as the consultant told me to seek a second opinion as it had been written terribly. Reach out to the secretary see if she can send you a copy. Your entitled to every big of your medical information. After finding out a bit more from some previous surgery I had I'm now in the process of requesting my mri images etc too via Access to Records. Your local hospital etc should have a specific email for you to contact xx

[Comedykid]

I was told that I had thickening on my utersacral ligaments and appendix that is what was reported on my mri and they said to me that they thought that was indicative of endo and so have booked a lap to confirm and remove the appendix etc. I would seek a second opinion or wait until he has spoken to the surgeon as they might still want to explore it’s horrible when things aren’t clear cut though

[pinkie25 in reply to Comedykid]

So were you diagnosed with DIE cause your profile says you were?

[Comedykid in reply to pinkie25]

Yes - that is what they believe as I have it on the ligaments and on my appendix and maybe other places they don’t know - nothing is ever fully confirmed until you have the lap as that is the only way to tell for sure. But from my scans they are thinking DIE because of where it is and it being on other organs

[thebird1]

Hi, I'm in the same situation. I've asked for a second opinion from an endo specialist as it turns out I've been under a fertility specialist. I have thickening of the vaginal- recto septum and of the utero- sacral ligament. I was told they couldn't operate on it. I asked if it was endo and they've said it is.

[Comedykid in reply to thebird1]

I’m so sorry, I don’t know why they said they can’t operate as mine is on the ligaments and my consultant/surgeon has said they will be operating. Maybe it is the position they thought it wasn’t possible. Hopefully a second opinion will give some options.