What should I remember and do before surgery

[Mashaxmeeshka]

Hello

So I have been struggling since I started having periods with painful period, irregular bleeding, excess bleeding and many other symptoms. I was diagnosed at 17 with pcos. Since then whenever I speak to doctors about my issues I have been told its my pcos. Thats a whole other story.

Anyways so last 6 ish years things got really bad wont go into it but would not stop bleeding and all they did was send me to fertility treatment cause I wanted to conceive. Neither my gp or fertility clinic cared about my issues. After 1 year of treatment I gave up due to covid lockdown treatment stopped anyways. I could not go back as I had side effects from medication and no one would do anything about it.

Then a few years later I found inositol and started taking that. Within 6 months I got pregnant out of nowhere, after 11 years of infertility. However I had a misscarriage. The miscarriage took ages for me to complete taking 2 courses of medication. I had alot of problems for 6 months after that.

I was sent for ultrasound in October due to bleeding for 35 days straight, gushing blood spontaneously and pain and swelling around my pelvis. They fast tracked the scan as it took a year last time and was done with a seperate clinic. I was also referred to gynecology. Scan suggested I might have endometriosis and that my left ovary seems as though its adhering to my uterus.

Now in February I saw gyno and he said he didnt have access to that scan and sent me to get another which I had yesterday. He was wanting to put me on hormones for a cyst from a scan from 2018!

Anyways during my transvaginal and ultrasound scan yesterday I cried and was in excruiciating pain. The sonographer confirmed my ovary is adhering to my uterus. I have had this scan over 20 times in my life and never felt that pain.

Now from all the research I have done, as I am in pain everyday and I cannot bare it. I am on codiene but this gives me indigestion and constipated me too much and so I try to keep to a minimum. I also have prescribed gastroresistant stuff still doesn't help. What does everyone else do to deal with pain outside of medication and hearing pad I am in so much pain and the appointments are taking so long.

Does anyone also have any advice on treatment. So I plan to ask for a mri and ovarian reserve test before laproscopy. Is there anything else I should do as I've understood I am taken more seriously when I lead my treatment. I have struggled for too many years and havnt been taken seriously I know this is the case for many women and its despicable.

Any advice or help if much appreciated, sorry if I'm all over the place I'm going on 5 weeks of swelling and pain and being stuck to my sofa

[Moon_maiden]

Hi

Sorry you are in so much pain and had a miscarriage.

I take Oramorph, Duloxitine and paracetamol, lactulose to combat constipation, and sometimes Diclofenac suppositories as an anti inflammatory. The Diclofenac might be worth trying. I’ve tried all sorts. Nefopam is non opiate and could be worth a try. GPs are reluctant as it’s more expensive but might suit you better.

Tell Gynae you want those tests, don’t ask, keep it polite but it gives them less of a get out clause. I told last surgeon to take my appendix out, he was a bit taken aback but has allowed me to sit on a chair for longer. Unfortunately we do have to take control, we know our bodies better than they do. It’s a good idea for MRI of both pelvis and abdomen to check for anything else.

Hope you get somewhere with Gynae or GP.