Current symptoms

[NICKYMARIE]

Im currently waiting for a scan on my ovaries.

But just had to come into my gp as the pain in my left ovary has got so severe i couldn't even walk.

Ive always suffered with pain and very very heavy periods and have been having this stabbing pain in my left ovary for a year now every time i ovulate and on my period but the last two months its got worse.

These last few months ive been needing to urinate every 15 mins and the intensity of that gets worse with this pain and on my period.

He has just suggested a ovarian cancer blood test due to all the symtoms and its sent my health anxiety through the roof.

Are these endo symtoms? Or has anyone else had these symtoms? What did it turn out to be if so.

Thankyou

[Law94]

Hi, sorry to hear you are going through this. I had similar symptoms and I got my endo diagnosis by laparoscopy last week.

Over the past year I too had right side ovary pain which was bad around ovulation and whilst on my period, and I noticed this getting progressively worse each month. I also noticed I had to urinate more often and had to get up in the night to urinate. I had three internal ultrasounds which all showed nothing, it was only once the laparoscopy was preformed that they found endo on my right pelvic wall, left ovary, POD and other places.

I hope you can get some answers, if your ultrasound is inconclusive, push for further tests, pain isn’t normal or something we should have to put up with, answers and solutions are needed xx

[RosieFalkor]

Hi,

I have similar symptoms and I have severe Endo. I had a raised CA125 blood test and this gave me horrible health anxiety until I got my diagnosis. Don’t panic even if the blood test is high, this is common with Endo.

I had 7 ultrasounds before they found even a hint of Endo.

[Deedee112345]

Hi Nicky bless you reading your post I resonate so much as I too have the same symptoms and urinating all the time and painful bladder when needing to urinate, I believe this is all due to severe endo, adeno and other issues. There is nothing to suggest cancer having had an MRI and other tests although I worry about it because like you pain especially in left ovary is so bad. Sharp pain too, I hope you get sorted very soon and although it's easier said than done try not to worry that its more than what it is endo alone can be so painful with the cysts and adhesions, my ovary is squashed and stuck and that's why I experience the pain that I do. Xx thoughts are with you.

[Cocoacupid]

hey Nicky I was diagnosed with severe endo last year in April as the past three to four years I haven’t been great . Wasn’t able to empty my bladder properly or even poo properly as I have severe endo in the bowel I’m having further surgery this year. I get severe anxiety so when my ca125 was raised I immediately thought what if I have cancer as had blood in poo even get it in my urine I get really bad kidney pain I started to get ovalation pains and started to bleed on the mirena coil until a endometrioma was removed but getting those symptoms again where I’m nausea all the time if I don’t take anti sickness I vomit all day the gp back in look down was really horrible I kept going back or going to a and e as I just had severe pain and I was really passing urine they said oh it’s just an infection. Or your being sick just because your constipated. I was like I was suffering severe diarrhea at this stage so I was glad I had a reason for the way I felt after 27 years of my life . We know are body I was that depressed I said I wanted to end it as the hospital or drs just weren’t going anything. Thankfully now over the last year and a half or more I have had carpel tunnel surgery on both wrists and my lap so I know totally feel like I’m being validated. I’m still on waiting list as I was told I had Asperger’s syndrome but have been on that nearly two years now so hopefully 🤞 things will be put in to place but on my hospital records it says I have borderline personality disorder and because of that disorder label which I know I don’t have as was never like the people I had to do therapy with it reflects on treatment I have received as it’s on my notes hopefully having the Asperger diagnosis I can then put a big pals complaint the mental health team that made me like a zombie with all the drugs I was put on . As they weren’t helpful at all and now I can’t even come of the drugs I was put on as I get withdrawal syndrome from them . So I feel you totally 💯. It’s stressful with anxiety though you always thinking especially me the worst . Then in the end what is the worst that can happen. Xx