Which surgeon: Desperate to find best... - Endometriosis UK

Endometriosis UK

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Which surgeon

babyFreya1 profile image
28 Replies

Desperate to find best laparoscopy specialist who is recognised nationally for his/her endometriosis surgery as well as having endometriosis as his/her special interest.

We do not mind how far to travel or even pay privately. Our daughter is desperate for treatment and is at the bottom of the waiting list for local gynaecology appointment.

I am aware of the BSGE centres and the criteria that they have to achieve accreditation but there is still a big difference in the expertise of individual specialists within those centres. Our GP is happy to refer to any specialist privately but has very little knowledge " who is the best in the field"

I would be very grateful if anybody could message me privately with their experiences and knowledge.

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babyFreya1
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28 Replies
Elsidee11 profile image
Elsidee11

check out Nancys nook - there’s a list. Dr Barton-Smith and Dr Khazali are both on there x

Purple_Badgers profile image
Purple_Badgers in reply to Elsidee11

For balance, I would just like to mention that Nancy’s Nook doesn’t seem to be big on negative/honest critical feedback reviews, so for a fuller picture I recommend FB groups that allow full and frank discussion of patient experiences, both good and bad. x

babyFreya1 profile image
babyFreya1 in reply to Elsidee11

thank you for information. Will check it out. Really appreciate it.

Moon_maiden profile image
Moon_maiden

Hi

They don’t like names on here but there is a Facebook endometriosis UK site that you can ask these types of questions. You’re right about BSGE and differences in consultants.

Has she had an MRI? That’s useful as well. You can refer yourself for these if paying. Look up online for MRI it’s often cheaper than going directly to a private hospital. If you do pay do abdomen as well as pelvic just to make sure it’s not spread. A rough guide I paid £400 three years ago for two parts.

Hope you get something sorted for your daughter soon.

Sunset-lady profile image
Sunset-lady in reply to Moon_maiden

I paid last week £589

babyFreya1 profile image
babyFreya1 in reply to Moon_maiden

This is really useful. Thank you very much.

Also started using Facebook now. Thanks again

MyStar86 profile image
MyStar86

where are you based in the country? If you are willing to go private there is a specialist endometriosis centre in London which is amazing I can send you the name and the consultant if you want but would need to be via a direct message as I can’t name directly on here. Good luck

babyFreya1 profile image
babyFreya1 in reply to MyStar86

We are in North West England Open to all options. My email is lonejohnson@hotmail.com

MyStar86 profile image
MyStar86 in reply to babyFreya1

I will send you a message via this website and if you don’t get it I’ll send to you via email but we can send direct messages here so keep your your eye out as I will do it now xx

Dottydalmatian1 profile image
Dottydalmatian1 in reply to MyStar86

Hello, could i possibly have this also via the chat? hoping to seek some advise from a specialist as i just feel fobbed off by the NHS :(

MyStar86 profile image
MyStar86 in reply to babyFreya1

I have sent you a direct message let me know if you get it and if not I’ll send an email xx

Elizabean profile image
Elizabean in reply to MyStar86

Hi MyStar86, would you please be so kind to also PM me the details of the endo centre and the consultant please? I am also in the North West of England but would certainly travel to London for the right endo consultant! Many thanks in advance.

MyStar86 profile image
MyStar86 in reply to Elizabean

I have sent you a few messages as the first one the links didn’t work but hopefully you can open them now just let me know if you have any questions xx

Elizabean profile image
Elizabean in reply to MyStar86

Thank you so much. I really appreciate it!

MyStar86 profile image
MyStar86 in reply to Elizabean

No worries at all, another questions I am always here and happy to help. Good luck xx

reidyaf profile image
reidyaf in reply to MyStar86

Hi please could you send me the details too I am west London so easy to get to and would like to make enquiries please and thank you

MyStar86 profile image
MyStar86 in reply to reidyaf

I will do no worries I’ll send two messages as I have to find the links again but I will do it now xx

MyStar86 profile image
MyStar86 in reply to reidyaf

Managed to do it in one message so hopefully you have it now xx

Sunset-lady profile image
Sunset-lady

Look up endometriosis clinic in Middlesbrough. It's NHS but the head guy does private. Brilliant and renowned x

babyFreya1 profile image
babyFreya1 in reply to Sunset-lady

Thank you. will check it out

Jaskirat profile image
Jaskirat

I had Chris Mann, he was in edgbaston, he was so kind, good and thorough. An expert in endometriosis and he was great 👍🏽 cannot recommend enough

babyFreya1 profile image
babyFreya1

Thank you

Ebluar profile image
Ebluar

highly recommend dr kremer he’s based in Pinderfields at Wakefield or spire Methley park in Leeds xx

Niyla786 profile image
Niyla786 in reply to Ebluar

Hi I have been referred to Pinderfields and currently awaiting my appointment following an MRI. I will be seeing Dr Oboh who is part of the same clinic as Dr Kremer. Do you have any experience with him at all?

Ebluar profile image
Ebluar in reply to Niyla786

Hi lovely, I don’t unfortunately. I do know that dr kremer is the mid Yorkshire lead for endometriosis and is a endo specialist. If you could get under him I’d highly recommend. Xx

Niyla786 profile image
Niyla786 in reply to Ebluar

Thank you for getting back to me. I hope I get my consultation appointment through soon. X

kikilou23 profile image
kikilou23

Hello

I'm new on here but I'm not new to endometriosis. I have endured this vile condition since I was 15. The one surgeon I have found to be great is Mr Kent in Guildford at the Royal surrey county hospital. Yes I have had 6 operations, but that is only because I had stage 4 Endo. I have had a 5 year gap where I had normal periods and a life, but now it has grown back and I know I'll be having more surgeries. I would recommend Mr Andrew Kent.

MonieBL profile image
MonieBL

Mr El-Gizawy based in the North West xx

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