9.5cm left endometriosis nhs waiting time... - Endometriosis UK

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9.5cm left endometriosis nhs waiting time for surgery?

shasga profile image
7 Replies

hello i just want to ask if i have 9.5cm left endometriosis and probable 4cm endometriosis, how long should i wait for surgery in nhs? i already done my mri last 2 weeks but havent got my result yet?? does anybody know about nhs timeline?

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7 Replies
GreenViolin profile image
GreenViolin

Hi Shasga. It can vary depending on where you are. The best way to find out is ask your consultant’s secretary or GP as they should be able to give you a rough idea.

EvilEdna77 profile image
EvilEdna77

I went to see consultant in June, had ultrasound and mri, which picked up stage 4 endo, fused bowel, cysts and fibroid and was referred to a specialist centre and prescribed prostrop. I had a Meeting with the specialist in October. I am on the list for a full hysterectomy with bowel resection and bowel surgeon present. Was told it would be around a year from referrel to specialist centre for my surgery so I'm looking at august. It depends where you are bases, I'm Bristol.

shasga profile image
shasga in reply to EvilEdna77

thankyou for the replies :)

MangoStickyRice profile image
MangoStickyRice

Hi, I was told the aim is for treatment within 18 weeks following news that I needed a laporoscopy. However, I was also told that they frequently miss this cut off due to high demand and waiting lists.

shasga profile image
shasga in reply to MangoStickyRice

ahh i see thankyou so much for replying :) thats really helpful🥺💞

WhaleFairy profile image
WhaleFairy

Hi, I had similar situation to yours. Once I had my consultant appointment, at the specialist endometriosis centre, waited 10 months for a surgery date. I was told it could be 1-2 years but I called the bookings team after my pre-op assessment and asked to be contacted if there were any cancellations. That’s how I got my date earlier, they called me and offered a cancelled spot which was in 2 weeks. Good luck!!

shasga profile image
shasga in reply to WhaleFairy

ah i see thankyou for replying 🥹 does the specialist provide any medication while youre waiting for surgery??

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