Missing bank holiday again: Hi, does anyone... - Endometriosis UK

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Missing bank holiday again

Poppyg16 profile image
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Hi, does anyone else feel they are missing out on another bank holiday?

I hope you all are feeling much better than me today, but I’m feeling so frustrated that I’m again in bed on tramadol and ibuprofen with my hot water bottle and have had to miss out as usual as I can’t get out the house with my husband to go to a local event. I’ve only managed to get out the house three times in five weeks so am going stir crazy! The fatigue is unmanageable, my elderly parents in their eighties are much more active and independent than me!

Somehow late summer bank holiday always feels worse as it marks for me yet another summer that I’ve missed due to endo and fibromyalgia.

Sorry to be on a downer but I wanted to reach out to anyone else having a bad day today, all holidays alway seem to bring my health struggles of missing out on everyday normal life into focus.

Hopefully by next year I will be a bit better as I should have had my hysterectomy and bowel resection by then and be able to participate in life a bit more.

wishing you all more good days than bad

Poppy

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Jupiter2 profile image
Jupiter2

Sorry I just saw this, I really sympathise and hate that feeling of missing out on life. My parents in their 80s are also more active than me.I was due to have surgery on 12th September but it has been postponed a month due to me catching covid. So I spent the bank holiday in bed with covid and abdominal pain, and feeling frustrated that my surgery is postponed!

I hope you get some better days soon.

Poppyg16 profile image
Poppyg16 in reply toJupiter2

Sorry Jupiter2 that you are in a similar situation. I hope the Covid isn’t too bad? I had it last summer and already felt so fatigued with endo and fibromyalgia that I only realised I had it when my husband felt poorly and tested positive and I had a bad headache for a few days.

It must be so frustrating for you to have to wait another month but hopefully you will be feeling better by the new year to start to plan a bit more of life. It seems that we are always playing the waiting game with endo having to get through each phase and hurdle to move on.

I hope your parents are more understanding than mine, I have to hide the seriousness of my conditions from them as they are from the old school of pushing through and getting on with things.

I actually managed to get out yesterday and walked for about an hour! I had to use my walking stick but feel mentally much better as I know my legs can still work, it’s the exhaustion, pain and fatigue that stop me. I also changed my pain med routine and took it all before I went out and some anti nausea too which worked quite well as the tramadol made me feel a little spaced out and less anxious at suddenly feeling really rough when I’m out and needing to get home fast as usually happens these days when I venture out.

Hang on in there and focus on that new date. I guess on the up side your Covid immunity will get a boost from this bout so you won’t have to worry about picking it up when you are in hospital and need all your stength for recovery.

Sending you all my best wishes and thoughts.

Poppy

Jupiter2 profile image
Jupiter2 in reply toPoppyg16

Thanks Poppy, that's a good thought on the covid immunity. I'm glad you managed to get out yesterday, I'm definitely learning to take the opportunity to do something positive when I have a better day!Best wishes,

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