Zoladex Advice: Hi All, due to start on... - Endometriosis UK

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Zoladex Advice

Cats1311 profile image
11 Replies

Hi All,

due to start on zoladex injections next week after laparoscopy not helping with pain or periods. Any advice on them as consultant said can feel quite ill for 2/3 weeks after 1st one so not sure how bad ill be and whether to cancel social plans? Just want to be prepared!

Thanks! :)

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Cats1311
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11 Replies
JulesUK profile image
JulesUK

I wouldn’t say I felt ill but given that it brings on a temporary menopause it can bring with it menopause usuals symptoms. Will you be taking HRT?

Cats1311 profile image
Cats1311 in reply toJulesUK

I won’t be taking HRT due to other medical issues and FH of breast & ovarian cancers. So I think that’s why the consultant is warning me of the menopause symptoms as he said can be quite severe in first few weeks!

JulesUK profile image
JulesUK in reply toCats1311

Understood. I didn’t take HRT the first time (6 months) but did the second time (2 years). For me it wasn’t the beginning it was a general feeling more tired, some weight gain (though I was less active in this period) and hot flushes.

Cats1311 profile image
Cats1311 in reply toJulesUK

Thank you, I’m hoping I’m not too bad as I already suffer with bad hot flushes now and chronic fatigue but hoping it doesn’t wipe me out haha! Appreciate your help :)

JulesUK profile image
JulesUK in reply toCats1311

Hope not too. Best wishes x

Thomasct profile image
Thomasct

I’ve been putting off zoladex for a couple of years but had my first injection 10 days ago, touch wood I feel ok, just the odd bit of hormonal rage xx

Cats1311 profile image
Cats1311 in reply toThomasct

That’s good to hear it’s not knocked you about too much! I feel like I already have hormonal rage from my hectic cycle haha so hopefully not too bad 🤞🏻 thanks for your advice :) x

Lilou78 profile image
Lilou78

Hello, I'm on my 4th one now. First one was fine no side effects nothing. My joints ache a bit just after the injection but then I was fine. The second one, my joints were achy a lot but I took some menopause supplements that you can find in boots etc and I'm fine now. But i guess we are all different. Good luck

Cats1311 profile image
Cats1311 in reply toLilou78

Yes I’ve heard this side affect! I’ve bought some menopause supplements just in preparation too which hopefully helps 🤞🏻 thanks so much for your advice :)

ChelseaBlue01 profile image
ChelseaBlue01

Hi! I have just stopped zoladex and I cannot recommend this enough. obviously everyone is different and will experience different things, but for me personally it reduced all pain and gave me my life back. The symptoms that I experienced while on the injections included hot flushes, leg and bone pain and weight gain (I was underweight anyway so this has been a positive for me), and of course no periods!. After being on the injections for 2.5 years I have had to stop due to extreme bone pain even taken alongside the tibolone HRT. As for when I started the injections the first 2/3 weeks I did have cramping and was seriously considering not continuing it as I didn't see a difference but it can definitely take a while to adapt to the injection x

Cats1311 profile image
Cats1311 in reply toChelseaBlue01

That’s so good to hear you’re doing so well with them but unfortunate you have to stop them! I’m worried I’ll be the same, love the injections but then I’ll have to come off them eventually! Thanks so much for your advice, appreciate your help! I’m going to take osteo supplements also as I’m worried about the bone loss side, especially because not taking HRT! Yeah I’ve been told to persevere with them as they settle after a while so fingers crossed 🤞🏻 x

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