Ultrasound Clear not sure next step?

[Smurf2023]

Hi everyone,

I have always had painful heavy periods, irregular as in can come early or be late. But have never missed a month entirely.

For the last six months I have been having a dull ache on my right side of my stomach, gets more painful days prior to periods and esp. during. (Not appendix as had it removed as a child).

My lower stomach seems to be bloated and painful regardless of time of month. When I am coming up to my period I have pain across lower stomach going into pelvis has become more painful going into my groin/thighs. Which I’ve never had before.

I have had pain when needing to go to the toilet for a wee or poo. Again find the pain radiates around the lower right not always but mostly there. Have had shooting pains up my bum where I had to stop and hold on to something walking around in Tesco I thought I was going to pass out!!

I’ve always suffered with UTI’s and feeling, had bladder stretch 4 yrs ago and put it down to Intersistal cystitis.

GP did stool samples and bloods all came back clear. So referred me down the gynae route.

Had an internal examination which when the nurse was pressing on my pelvis was extremely painful. I had an external and internal ultrasound which both came back clear.

Not really sure where to go from here, many thanks for reading and sharing advice.

[huhfimmie]

Hi, your symptoms do sound similar to endo. I'd advise to push for an MRI scan and then potentially ask about laparoscopy. Have you told your gp you think it might be endo? Both my ultrasound and MRI came back clear, then I was lucky enought to have a laparoscopy and found stage 2 bowel endo. Wishing you all the best and let me know if there's anything I can help you with x

[Smurf2023 in reply to huhfimmie]

Thank you. Did you have IBS type symptoms with your bowel endo? I’ve had bowel spasms that have been so painful.

[huhfimmie in reply to Smurf2023]

Yes I definitely did, I thought it was normal though and didn't realise it was endo related. Had intense stabbing pains when going to the toilet especially on my period, shooting pains up my backside etc. I had endo around my bladder and bowel.

[megiiva]

Hi Gorgeous, sorry to hear that you're struggling, but I found that NHS doctors just brush you off,and many of them work privately as well,so they getting their money for you even if they don't see you. I'm 43 and been struggling with all Endo symptoms for over 6 years, but though as they look like so many other (IBS,Sibo,perimenopause, gastritis and so on) that every single time when I go to my GP they were telling maybe I'm depressed:)hahaha...anyway after pushing via my private insurance found that I had a fibroid, which was removed last year,then had Sibo and then Ovation cyst (which burst) and did blood test, CT scan,ultrasound, nothing shows Endo,so they said maybe I have IBS (but got it too badly..haha right).I insist for Laproscopy so they can take biopsy from the cyst and bam,turned I have stage 4 Endometriosis, both ovaries,tubes and my bladder. The doctor did it is Nitish Narvekar,amazing. I'm post 3 weeks after my Endo Laproscopy and still bloated and bit painful, but hoping by week 6-8 to get better if no then I may have IBS,as they ussually goes together plus Sibo. Check again...I have the same pain and same symptoms, they should check it properly.

[Smurf2023 in reply to megiiva]

thank you, this is really helpful. I’ve suffered with ibs symptoms since a child so I’m now wondering if it is linked. There is nothing else diet wise I can change I don’t eat any gluten and rarely dairy!!

[CryBaby91]

Hi Smurf2023!

Scans done in the hands of a non professional are rarely going to pick things up! Endo is very hard to see on scans, especially when you find out that some patches can be completely SEE THROUGH. So no, having a clear scan does not rule endo out. Quite the opposite!

Your symptoms sound a lot like endo. If you need some information I can highly recommend Nancy's Nook, they are on Facebook and have a website too. The information on there has been invaluable to me. This may be a battle but keep pushing, those symptoms are not normal and should not be just fobbed off as IBS. Which way too many of us have happen! Xxx

[HT267]

Hi,I had very similar symptoms to you all my scans were clear but had the laprscopy and my ovaries and bowel was sryck together due to stage 2 endometriosis. An MRI may help to show it but if your noticing symptoms getting worse I'd definitely recommend the lap just to rule out endo if nothing else

Wishing you luck x