Hi everyone, I was newly diagnosed with endo from a laparoscopy in May last year. I’m struggling to know where to turn with the ongoing management of this, I was told I didn’t need a follow up after surgery and have no specialist team to contact with any queries.
I was on holiday last month and a stranger congratulated me on my pregnancy (even though I’m not pregnant) and it made me realise how abnormal my bloating is and that I need to work out what’s causing this so I started the endo elimination diet and contacted my GP. My GP said he thinks my symptoms point to IBS even though I mentioned my endometriosis diagnosis this was not discussed as a possible cause. My GP is going to do a stool sample to check for inflammatory markers and a blood test for coeliac. It would be nice to cross a few other possible causes off of the list but I’m unsure how much knowledge GP’s have in regards to endometriosis.
I’m worried about the condition progressing and me not knowing about it. It’s controlling a lot of my everyday life. Sex is painful every time, I’m getting thrush all the time but typically had a negative test result when I involved my GP in order to get better thrush treatment, and now the bloating. Does anyone else suffer with constant thrush?
What usually happens in regards to monitoring endometriosis progression? Is there such a thing? And is it normal not to have access to a specialist once you’ve been diagnosed with endo?
My head is so muddled, and the pregnancy comment has had a huge impact on my self esteem. I am staying off of caffeine, alcohol and sugar now as much as possible and do timed eating most days. Any advice would be much appreciated.
Have you tried drinking Kefir everyday? It seems to work for bloating for my daughter and myself.
Thankyou for the reply framy, no I haven’t tried kefir! I did previously try an actimel each day but stopped it at the start of the elimination diet! Will definitely give kefir a try Thankyou 😊